Elevating Public Health Impact in Axial SpA Awareness
Elevate your impact as a change-maker in Axial Spondyloarthritis (Axial SpA) awareness by implementing a comprehensive strategy spanning levels from Bronze to Platinum. Showcase your involvement, leadership, and sustainable achievements through active participation, engagement, and effective communication within local networks. From conducting audits to delivering educational sessions and collaborating with healthcare professionals, this guide provides actionable steps to drive public awareness and foster a proactive approach towards early diagnosis and management of Axial SpA.
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Presentation Transcript
Public Awareness how can I evidence I am a change maker? Level Bronze Silver Gold Platinum Involvement Engagement Active participation Leadership Sustainable achievement Act on Axial SpA presentation within local network Put time to diagnosis audit patient information in clinics and encourage patients to complete Arrange for campaign content to be used on social channels Promote the NASS symptom checker using Act on Axial collateral within locality / local network Create a formal local network to deliver educational sessions for Healthcare Professionals Work with other agencies to collaborate on public awareness Approach local media to talk about the signs of axial SpA (utilising NASS collateral and messaging) Promote the NASS symptom checker using Act on Axial SpA collateral Deliver Act on Axial SpA presentation 10/20 minute presentation to team Share Act On Axial SpA materials on social media Use programme collateral in work settings / clinics Share campaign messages with colleagues Create and deliver Act on Axial SpA presentation outside of network Organise public awareness activity in locality using NASS collateral Arrange a local axial SpA educational event for HCPs Public Awareness Compulsory items are shown in orange and bold above. www.actonaxialspa.com
Primary Care how can I evidence I am a change maker? Level Bronze Silver Gold Platinum Involvement Engagement Active participation Leadership Sustainable achievement Promote Osteopath / Chiropractor referral template Deliver at least one education session to primary care network across a locality Express interest in the pop-up tool (e.g. PRIMIS) Informal discussion with primary care clinicians about identification and referral of suspected axial SpA patients Get local agreement and implementation plan for pop-up tool (e.g. PRIMIS) Deliver multiple Axial SpA presentations to primary care across a locality/within local network Engage patient feedback in relation to service development Contribute to peer to peer network either with content for newsletter or presentation in webinar Promote symptom checker at national level symptom checker, SPADE tool, PRIMIS pop up Champion pop-up (e.g. PRIMIS) tool roll out & monitoring performance Utilise pop up tool (e.g. PRIMIS) in local Primary care network Deliver multiple Axial SpA presentations outside locality Primary Care Compulsory items are shown in orange and bold above. www.actonaxialspa.com
Secondary Care how can I evidence I am a change maker? Level Bronze Silver Gold Platinum Involvement Engagement Active participation Leadership Sustainable achievement Deliver axial SpA education session to gastroenterology /dermatology/ ophthalmology Create links with secondary care colleagues in gastroenterology, dermatology and/or ophthalmology Baseline number of referrals from Secondary Care specialists Develop informal secondary care pathway with colleagues in gastroenterology, dermatology and/or ophthalmology Develop formal Secondary Care pathway (joint clinics, MDTs inc virtual, electronic referral form) Ongoing audit of Secondary Care referral pathways 90% of patients with EMM & IBP get identified and referred on to rheumatology on first presentation Secondary Care Compulsory items are shown in orange and bold above. www.actonaxialspa.com
Rheumatology how can I evidence I am a change maker? Level Bronze Silver Gold Platinum Involvement Engagement Active participation Leadership Sustainable achievement Deliver axial SpA education session to rheumatology team Join and engage in peer to peer network Up to date NASS guidebooks on display Promote axial SpA pathways recommended by GIRFT Information on possible diagnosis / signposting to NASS while waiting for diagnosis Contribute to peer to peer network by writing blog for newsletter or presenting at webinar Update MRI pathway to ensure inflammatory spine protocol is followed by those requesting 8 week referral to diagnosis time Effective triaging to reduce wait times Lead a peer to peer network Contribute to / attend Act on Axial SpA round table / policy development Local peer to peer network (eg SCAN) Lead a policy development round table relating to Act on Axial SpA 90% of patients achieve the Gold Standard One year time to diagnosis from symptom onset Rheumatology Compulsory items are shown in orange and bold above. www.actonaxialspa.com
Data and research how can I evidence I am a change maker? Level Bronze Silver Gold Platinum Involvement Engagement Active participation Leadership Sustainable achievement Submit data to the National Early Inflammatory Arthritis Audit (England/Wales) Submit data to NASS time to diagnosis audit (Scotland/Northern Ireland) Primary Care; Work with rheumatology departments to ensure participation in NEIAA/NASS audit Be involved in research on Act on Axial SpA Osteopaths/chiropractors tracking how many times they used the referral template and outcomes Continue to submit data to the National Early Inflammatory Arthritis Audit (England/Wales) Continue to submit data to NASS time to diagnosis audit (Scotland/Northern Ireland) Continue to submit data to NASS time to diagnosis audit (England / Wales) Primary care to work with rheumatology departments to ensure participation in NEIAA/NASS audit Develop a research proposal in Act on Axial SpA Submit a minimum of 50 patients per year to NEIAA (England / Wales) Regularly submit patients to the NASS Time to diagnosis audit (Scotland / Northern Ireland) Regularly submit patients to the NASS time to diagnosis audit (England / Wales) Undertake & publish research linked to axial SpA Primary care to work with rheumatology departments to ensure participation in NEIAA/NASS audit Share good practice with peers outside of trust /health board Present research externally Input data to NEIAA (England and Wales) and NASS audit (Scotland and NI) 90% of patients Primary care to work with rheumatology departments to ensure participation in NEIAA/NASS audit Data and Research Compulsory items are shown in orange and bold above. www.actonaxialspa.com
