Legal Rights of Family Carers of People Living with Dementia Project
The Law 4 Dementia Carers project, funded by a grant, aims to develop legal training programs for carers and health/social staff, focusing on the legal rights of family carers of individuals with dementia. Through surveys and interviews, the project seeks to gather insights on the impact of emergency legislation during the Coronavirus pandemic on carers' lives and legal rights, influencing potential reviews of relevant acts. Various outputs including guides, webinars, and collaborations with dementia organizations are already in place to support carers. The endeavor involves a partnership between Life Story Network/TIDE, Making Space, and Manchester Law School's Dementia Law Clinic.
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Law 4 Dementia Carers A two year project funded by a grant from The Legal Education Foundation A partnership between Life Story Network/tide (together in dementia everyday) and Making Space with support from Manchester Law School s Dementia Law Clinic at the University of Manchester The project s focus is on the legal rights of family carers of people living with dementia.
L4DC Objectives To develop a legal training programme for carers which will be delivered face to face (or online) as part of the tide offer of support. To develop a training programme for health and social staff as part of the social prescribing model using the experience of expert carers. To produce guidance for relevant and important bodies so that legal support is seen and used nationally as a very important health outcome and can be accessed through a variety of sources including direct referrals from, for example, a GP surgery.
Current focus and planned outcomes Gathering carers views on the impact of the Coronavirus 2020 emergency legislation on their lives and legal rights, including carers access to assessment and support The findings will be used to contribute to and influence the 6 month review of the Act scheduled to take place in the autumn
Projects outputs to date In collaboration with the Dementia Law Clinic at Manchester University we have produced an easy read guide to the potential changes to the Care Act 2014 and how these may affect carers. Available at https://www.tide.uk.net/law-4- dementia-carer-statement/ Delivered a free webinar to carers focused on legislation as it affects England and Wales. Carer heard information from legal experts about the law and welfare issues that may affect them. Available at https://www.tide.uk.net/resources/law- 4-dementia-carers/ Together with other dementia organisations united in One Dementia Voice we called on Government though an open letter to avert hidden catastrophe allowing family carers to visit Care Homes. Further details available: https://www.bbc.co.uk/news/uk-53338139 Greater Manchester Health and Social Care Partnership survey
Approach and Methodology Survey sent to tide s members (over 1000 people, including current and former carers) and other carer networks to collect data on how their legal rights have been affected by the Covid 19 measures. Currently received 180 responses. The survey will be live until the 5thof August The survey will be followed by semi-structured telephone interviews with a sample of carers who have opted in to be interviewed. 12 interviews with carers from the 4 nations will take place. Survey and interview data will be thematically analysed and the findings will be collated and presented in a variety of formats (a report, a brief easy-read summary, presentations) to influence the review of the Coronavirus Act 2020.
For further details, please contact Karen Greenhalgh Project Manager karen@tide.uk.net Mobile: 07704 168868 For details on methodology Lena O Connell, Impact Manager, tide lena@tide.uk.net
