Improving End-of-Life Care for LGBTQ+ People
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Mark Jackson, Policy Manager for England
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Care for more than 40,000 people every year
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9 hospices across UK
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Free information & support line, materials and web resources
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Largest funder of palliative and end of life care research in
the UK
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Funded research from University of Nottingham, King’s College
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Commissioned London School of Economics to research who was
missing out on palliative care and why (2014)
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LSE found only one systematic review into LGBTQ+ experiences, from 2012
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Followed the LSE work with our 2016 report
Hiding Who I Am
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Explored more fully the issues faced by LGBTQ+ people at EOL, how
and why people face barriers and discrimination
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74% of LGBTQ+ people told us that they were not confident services
would provide for their needs
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Anticipating discrimination
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Complexities of religion and LGBT end of life care
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Assumptions about identity and family structure
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Varied support networks
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Unsupported grief
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Increased pressure on carers
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‘Structural’ barriers
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Person-centred
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Representative
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Supporting carers
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Not making assumptions
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Ensuring we recognize and represent diversity
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Advocating for person-centred care
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Challenging inequalities and discriminatory practices
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Working with LGBT groups to raise awareness of EOLC
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Supporting staff through further training
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Launched December 2019
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Developed in consultation with Stonewall
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New e-learning for staff
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Visible symbol of our commitment to diversity
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Alongside new booklet for LGBTQ+ communities
Marie Curie is dedicated to enhancing end-of-life care services for LGBTQ+ individuals by addressing the unique challenges they face, such as discrimination, religious complexities, and support network variations. Through research and advocacy, Marie Curie aims to create a more inclusive and supportive environment for LGBTQ+ individuals during their end-of-life journey.
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Presentation Transcript
Hiding who I am Hiding who I am end of life care for LGBTQ+ people LGBTQ+ people end of life care for Mark Jackson, Policy Manager for England
Background Background Care for more than 40,000 people every year 9 hospices across UK Free information & support line, materials and web resources Largest funder of palliative and end of life care research in the UK
Early work on EOLC for LGBTQ+ people Early work on EOLC for LGBTQ+ people Funded research from University of Nottingham, King s College Commissioned London School of Economics to research who was missing out on palliative care and why (2014) LSE found only one systematic review into LGBTQ+ experiences, from 2012
Hiding Who I Am Hiding Who I Am Followed the LSE work with our 2016 report Hiding Who I Am Explored more fully the issues faced by LGBTQ+ people at EOL, how and why people face barriers and discrimination 74% of LGBTQ+ people told us that they were not confident services would provide for their needs
Key issues Key issues Anticipating discrimination Complexities of religion and LGBT end of life care Assumptions about identity and family structure Varied support networks Unsupported grief Increased pressure on carers Structural barriers
What does good EOLC look like? What does good EOLC look like? Person-centred Representative Supporting carers Not making assumptions
Marie Curies commitments Marie Curie s commitments Ensuring we recognize and represent diversity Advocating for person-centred care Challenging inequalities and discriminatory practices Working with LGBT groups to raise awareness of EOLC Supporting staff through further training
Rainbow Pin project Rainbow Pin project Launched December 2019 Developed in consultation with Stonewall New e-learning for staff Visible symbol of our commitment to diversity Alongside new booklet for LGBTQ+ communities
