Pediatric Spiritual Care in Palliative Settings: Insights from Providence Hospice
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Spiritual Care for
Pediatric Palliative Care
and Hospice
The Rev. David Yoo, M.Div., BCC
Providence Hospice of Seattle
Stepping Stones
Presentation Overview
•
Differences in hospital and hospice pediatric work
•
Chaplain introduction: “How to get a chaplain plugged-in 101”
•
Pediatric spiritual care themes: The voices of children and their families
•
How pediatric chaplain supports families
Hospital vs. Pediatric Hospice
•
Generally, longer term relationship than hospital stays
•
Generally, more time to be creative in spiritual care
•
Generally, less of an immediate need/urgency
“How to get a chaplain plugged-in 101”
•
The team’s support for chaplain
•
Creativity – “everyone loves music…except the who don’t!”
•
“Why don’t we take a look at the calendar together?”
Themes of spiritual care in pediatric context
•
The source: “Why is this happening to my child?”
•
The Fear: “What if my other child gets sick too?”
•
Confession of Love : “He is everything to me.”
•
Confession of Peace: “I have never said this to anyone but I wish that she
would be at peace soon…”
•
Advocacy: “I want my child to be presented at church.”
Themes of spiritual care in pediatric context
•
Excruciating fatigue: “I don’t want to do this anymore”
•
A sense of betrayal: “I know I should obey God and love Him but I feel so
betrayed by god…”
•
Meaning of life: “I feel like I’m stuck in a time machine.”
•
Loneliness & Isolation: “I’m home everyday with my child…”
•
Authenticity: “I want to talk about death but no one will talk to me directly”
•
Facing the new norm: “Why can’t I eat what my sister eats?”
Pediatric chaplain’s service
•
Talk to the patient
•
Talk about the patient
•
Pray for the patient
•
Listen
•
Acknowledge
•
Be creative
Pediatric chaplain’s service
“This Work”
Exhilarating
and
exhausting
drives me up a wall
and
opens doors I never imagined
lays bare a wide range of emotion
yet
leaves me feeling numb beyond belief
provides tremendous satisfaction
and
leaves me feeling profoundly helpless
evokes genuine empathy
and
provokes a fearsome intolerance within me
puts me in touch with deep suffering
and
points me toward greater wholeness
“This Work”
brings me face to face with many poverties
and
enriches me encounter by
encounter
renews my hope
and
leaves me grasping for faith
enables me to envision a future
but
with no ability to control it
breaks me apart emotionally
and
breaks me open spiritually
leaves me wounded
and
heals me
- Ken Kraybill
Explore the nuances of providing spiritual care in pediatric palliative settings through the lens of The Rev. David Yoo at Providence Hospice of Seattle. Learn about the unique themes, challenges, and approaches involved in supporting children and their families facing serious illnesses. Gain insights into the role of pediatric chaplains and the diverse emotional journeys encountered in this compassionate work.
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Presentation Transcript
Spiritual Care for Pediatric Palliative Care and Hospice The Rev. David Yoo, M.Div., BCC Providence Hospice of Seattle Stepping Stones
Presentation Overview Differences in hospital and hospice pediatric work Chaplain introduction: How to get a chaplain plugged-in 101 Pediatric spiritual care themes: The voices of children and their families How pediatric chaplain supports families
Hospital vs. Pediatric Hospice Generally, longer term relationship than hospital stays Generally, more time to be creative in spiritual care Generally, less of an immediate need/urgency
How to get a chaplain plugged-in 101 The team s support for chaplain Creativity everyone loves music except the who don t! Why don t we take a look at the calendar together?
Themes of spiritual care in pediatric context The source: Why is this happening to my child? The Fear: What if my other child gets sick too? Confession of Love : He is everything to me. Confession of Peace: I have never said this to anyone but I wish that she would be at peace soon Advocacy: I want my child to be presented at church.
Themes of spiritual care in pediatric context Excruciating fatigue: I don t want to do this anymore A sense of betrayal: I know I should obey God and love Him but I feel so betrayed by god Meaning of life: I feel like I m stuck in a time machine. Loneliness & Isolation: I m home everyday with my child Authenticity: I want to talk about death but no one will talk to me directly Facing the new norm: Why can t I eat what my sister eats?
Pediatric chaplains service Talk to the patient Talk about the patient Pray for the patient
Pediatric chaplains service Listen Acknowledge Be creative
This Work Exhilarating and exhausting drives me up a wall and opens doors I never imagined lays bare a wide range of emotion yet leaves me feeling numb beyond belief provides tremendous satisfaction and leaves me feeling profoundly helpless evokes genuine empathy and provokes a fearsome intolerance within me puts me in touch with deep suffering and points me toward greater wholeness
This Work brings me face to face with many poverties and enriches me encounter by encounter renews my hope and leaves me grasping for faith enables me to envision a future but with no ability to control it breaks me apart emotionally and breaks me open spiritually leaves me wounded and heals me - Ken Kraybill
