Accessing NIDDK Central Repository Resources for Secondary Research
Explore how to access data and biospecimens from the NIDDK Central Repository for secondary research. Learn about the repository's overview, demo, access requests process, and helpful links for studies and requestors.
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Accessing NIDDK Central Repository Resources Requesting Data and Biospecimens for Secondary Research
NIDDK Central Repository (NIDDK-CR) Overview Established in 2003 to expand the usefulness of extramurally NIDDK-funded multi-center clinical studies generated resources by providing access to a wider research community o Supports receipt and distribution of data and biospecimens in a manner that is ethical, equitable, and efficient o Enables investigators not involved with the original work to test new hypotheses without the need to collect new data and biospecimens o Promotes FAIR (Findable, Accessible, Interoperable, and Reusable) and TRUST (Transparency, Responsibility, User focus, Sustainability, and Technology) principles
NIDDK Central Repository Demo https://repository.niddk.nih.gov/home/
Access Requests Depending on the impact of the request on the repository collection: - Internal Administrative Review for requests where no specific sample, from a specific participant visit would be depleted by 10% or more - Peer Review for requests with one or more specific samples, from a specific participant visit would be depleted by 10% or more NIDDK-CR staff initial review and feedback Review and approval by NIDDK officials Gather Submit access request form documentation Sign agreement and accept cost estimate Biorepository pulls (and aliquots) specimens Specimens shipped Requestor invoiced
Helpful Links Studies Page: https://repository.niddk.nih.gov/search/study/ Material Counts Page: https://repository.niddk.nih.gov/search/counts/ Information for Requestors: https://repository.niddk.nih.gov/pages/for_requestors/ Frequently Asked Questions: https://repository.niddk.nih.gov/faq/ Contact Us: NIDDK-CRsupport@niddk.nih.gov
