Understanding the Impact of Considerations on People's Lives at IM4Q Statewide Conference 2022
Delve into the importance of considerations in individuals' lives at the IM4Q Annual Statewide Conference 2022. Explore how suggestions for change emerge from IM4Q interviews, fostering real change for individuals. Learn about the power of successful considerations in transforming lives and systems. Audience engagement and sharing of outcomes will highlight the potential to be a catalyst for positive change.
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You Can Change Someones Life: The Power of Successful Considerations Virtual IM4Q Annual Statewide Conference 2022 Guy Caruso - Institute on Disabilities Bill Krebs IM4Q Steering and Management Committee
Outline 1. Introduction - Why considerations are so important in people's lives? 2. Where can considerations come from? The EDE questions 3. Using the 14 Themes for Change 4. Sharing of considerations and successful outcomes 2021 IM4Q State Report - Making a Difference in the Lives of People Supported by ODP 5. Audience Questions & Comments 6. Closing
Why Considerations are so Important in People s Lives People have low/no expectations for the people interviewed, as they are seen in devalued roles People interviewed feel that they have been listened to, respected and valued Real important change can occur for a person People in the person s life see improvement (Supports Coordinators, family, providers/others) Individual change can foster system change YOU can be catalyst to help change someone s life
From IM4Q State Report and AE Reports 2021 What is the purpose of IM4Q? The IM4Q process gathers information used to improve the lives of these individuals and to ensure they are healthy and safe. This report focuses on considerations that emerged from IM4Q interviews during the 2018-2019 fiscal year. What are considerations ? Considerations are suggestions for change or improvement indicated by an individual, their family and/or staff, or the IM4Q monitoring team during the interview process.
EDE 2021-2022 Questions I. Satisfaction 2. If you don t have a competitive job (full or part time) for pay, would you like to have a job in the community? (NCI) 7. Would you rather do something else during the day? If you would rather do something else, what would you rather do?
I. Satisfaction 8. Is the paid staff who works with you at work (paid or volunteer), school, or at your community program nice or mean to you? Explain: *13. Do people (including staff) let you know before coming into your bedroom? (NCI) If no, explain:
I. Satisfaction *16. Would you rather live somewhere else? (NCI) (Consistency Question) If you'd like to live somewhere else, where would you like to live?
I. Satisfaction 18. Can you go on a date if you want to? Explain: 20. Do you get the services you need as part of your service plan (e.g., ISP)? If not, what is needed? 21. Are the people you live with nice or mean to you? Explain:
II. Dignity and Respect *1. Do all your staff treat you with respect? (Do they listen and talk to you?) (NCI) If not, which staff is it and what is the issue(s)? *3. Do people open and/or read your mail without asking you first? (NCI) If people open and read your mail without asking you first, why?
II. Dignity and Respect 4. Has anyone talked to you about self-advocacy? *5. Have you ever participated in a self-advocacy group meeting, conference, or event? Either online or in-person? *7. Do you feel that your staff have the right training to meet your needs? (NCI) If not, explain:
II. Dignity and Respect Section *11. Are you ever afraid or scared when you are at home? (NCI) *12. Are you ever afraid or scared when you are out in your neighborhood? (NCI) *13. Are you ever afraid or scared when you are at work (paid or volunteer), school, or other community activities? (NCI) *14. Are you ever afraid or scared when you are using transportation (on the bus, van, etc.)? (NCI) For each of the above - If you are ever afraid, what are you afraid or scared of?
II. Dignity and Respect 32. When you have your annual meeting (Individual Support Plan/ISP), does someone tell you how much money is in your budget? 36. Overall, are you happy or sad with your life? Why? 37. What would make your life better, make you happy?
III. Choice & Control Section 2. If there is a formal communication system in place, is it working? 3. If there is a formal communication system in place and it is working, is it being used regularly? 4. Is the formal communication system used across all settings (i.e., Can you use the system at home, at work, at school, and in your community)? Explain:
III. Choice & Control *6. Do you have a key or another way to get into your house/apartment on your own (such as a coded entry system)? *8. Can you lock your bedroom if you want to? (NCI) *11. Do you vote in official political elections? 12. Do you carry an identification card with your picture and your name and address? 26. Is there something you want to buy/purchase? If yes, there is something you want to buy or purchase, what is it?
V. Inclusion Section 10. Do you have all of the tools and equipment to make life easier for yourself? 11. Do you need changes to make your home more accessible (counters lowered, ramps installed, closets adapted, light switches lowered, or adaptations made to them, air conditioning, no smoking policies, attention to allergies to pets, dust, etc.)?
V. Inclusion Section 12. What changes would you like to see in your life in the next 2-3 years? This question may be answered by the individual or by staff, families or advocates. Who Said it? What is the Change in the Next 2-3 Years?
VI. COMPETENCE, PERSONAL GROWTH AND OPPORTUNITIES TO GROW AND LEARN 1. From your interviews and observations, what are some areas of growth and learning that the person could/might try? If none, just write none in the space provided. Feel free to list more than 3.
VIII. CONSIDERATIONS 1. If the person answered Yes to Section II Question 40 (i.e., it is O.K. for me to tell other people what you have told me), please list at least three things that you think would improve the quality of this person s life. Be as specific as possible. If you can only think of one or two, list them. If you can think of more, list them. Please refer to Sec II Question 37, Sec V Question 12 and Sec VI Question 1 as sources of information to develop considerations as well as other notes you have taken. Include issues related to the physical setting. Who Said it? Consideration (e.g. individual, family, staff or monitor)
Family Friend Guardian Survey 42. If the person answered Yes to question 41 (above), please ask for three things that the family/friend/guardian thinks would improve the quality of this person s life. Be as specific as possible. If they can only think of one or two, list them. If there are more than three please include these as well. 43. If there is any information you would like to have, please specify what information you would like in the space below. 44. Is there anything else you d like to tell us?
IM4Q Primary and Secondary Themes: Areas Change Can Occur 1. Adaptive Equipment 2. Communication Needs/Device/Services 3. Community Presence and Participation 4. Health/Well Being 5. Personal Rights, Competence Enhancement and Growth 6. Relationships/Friendships: 7. Residential/Living Situation Personal Change
IM4Q Primary and Secondary Themes: 8. Residential Building Adaptations/Modifications 9. Safety 10. Service System 11. Spiritual Life 12. Transportation 13. Work/Employment/Meaningful and Purposeful Activity 14. Miscellaneous:
From IM4Q State Report and AE Reports 2021 Why are considerations important? Considerations may result in service changes or provide an opportunity to improve the quality of life of the individual who has been interviewed. What happens after a consideration is recorded? Each consideration is written up by an IM4Q monitoring team, reviewed by their IM4Q Coordinator, and submitted into the Home and Community Service Information System (HCSIS). The Administrative Entity (AE) receives it and shares it with the Supports Coordination Organization (SCO), which assigns it to the appropriate support coordinator (SC) for follow-up. The SC enters the follow-up actions taken to address the consideration for AE approval. This process continues until the AE and IM4Q are satisfied with the action to address the consideration. Closing the Loop Process
From IM4Q State Report and AE Reports 2021 What is in this report? The following examples show how IM4Q has positively impacted the lives of individuals receiving ODP supports and why it is so important for individuals to participate in the IM4Q process. These successes are a result of the work, ingenuity, creativity, tenacity, and passion of SCs, providers, and others to make a positive difference in the daily lives of the people they serve.
From IM4Q State Report and AE Reports 2021 NOTE: The names of all individuals and some of the entities involved in the following closed considerations have been changed to protect confidentiality; however, the county in which the consideration took place is identified. Language has been edited for clarity.
Better Connected in Erie County Jerry has never had a cell phone before and is satisfied. Considerations Jerry would like: 1. A cell phone 2. To learn how to use a cell phone 3. A bus pass 4. A CD player/radio 5. To move to an area that he used to live in in the past Responses SC met with Jerry at his home to discuss these considerations. Then they called the Representative Payee to discuss them. The Representative Payee authorized the purchase of a basic cell phone with calling features only. Jerry has never had a cell phone before and was satisfied with this. Once Jerry received the phone, the SC assisted him with the initial phone set up. The Representative Payee agreed to send Jerry a bus pass in the mail each month for transportation. After Jerry shopped around to get a price for a portable CD player/radio, the Representative Payee authorized the payment. Jerry also said he would like to live in the city of Erie, because he eats meals at local city churches and City Mission. After meeting with his SC, he has agreed to stay at his current apartment during the winter and begin searching for a different apartment in the spring.
Home is Where the Heart is in Berks County Brittany and Malcolm were both able to move into the community home together and share a bedroom. Consideration: We interviewed Brittany, who lived on her own. She also had a boyfriend, Malcolm, and asked him to sit in on her survey. Brittany stated she wanted to be able to move into a community home with her boyfriend and he agreed that was also what he wanted. They both needed a little more assistance with managing their health, and they wanted to be able to live together. Response: One community home happened to be their provider of choice and had a bedroom licensed for two people. The couple was approved for Consolidated funding, and they were both able to move into the community home together and share a bedroom.
Zumba in Bradford-Sullivan Counties Kimberly is now employed at two locations to instruct Zumba classes. Consideration: Kimberly stated she would like to work as a Zumba instructor. Response: Kimberly trained to be a Zumba instructor using services both from the Office of Vocational Rehabilitation (OVR) and ODP. She obtained certification and is now employed at two locations to instruct Zumba classes.
Fossils in Bradford-Sullivan Counties Ken is now volunteering at a prehistoric museum and research center. Consideration: Ken would like assistance in finding avenues to pursue his interest in drawing prehistoric animals, also known as paleoart. Response: SC spoke with Ken, his mother, and the Program Specialist about expanding Ken s Community Participation days to include a day that would focus on paleontology. They started with taking one of his Fridays to explore this. Ken visits a local paleontology museum and research center every Friday to explore. He also volunteers there and has drawings displayed in the building.
New Van in Bucks County SC assisted Paul s family in obtaining the funding to purchase [a lift and van]. Consideration: Paul s family expressed that they need a Hoya lift and information about how to obtain an accessible van. Their son needs to be lifted everywhere. His father broke his leg over the summer as well, making this more challenging. Response: Adaptive equipment was discussed at a home monitoring with the family. SC assisted the family in receiving adaptations for a van, that the County AE approved. SC assisted the family in obtaining the funding to purchase these items.
Animal Lover in Mercer County Lisa was set up as a volunteer at a local rescue. Consideration: Lisa wanted to be a veterinarian but did not want to go to school. Response: Lisa was set up as a volunteer at a local rescue and goes there to play with the animals
New iPad in Carbon-Monroe-Pike Counties Evan was assisted to purchase an iPad for himself. Consideration: Evan would like a new iPad to improve his communication. He has been borrowing one from a local provide, but it needs to be returned and he uses it all the time, everywhere he goes. Response: Evan was assisted to purchase an iPad for himself. SC and SC Supervisor assisted with locating appropriate applications that his waiver could provide for him, for the iPad.
New Voter in Carbon-Monroe-Pike Counties Christina is now a registered voter. Consideration: Christina would like to learn how to vote. Response: SC worked with Christina and her family to complete the process for voter registration. Christina is now a registered voter which has had a positive impact on her personal growth.
Cross Country Trip from Franklin-Fulton Counties Mia made the trip and all went smoothly. Consideration: Mia mentioned that she would like to see her family (who live in Florida) more often. Could SC provide resources and information as appropriate? Response: Mia planned a trip to Florida for a week, flew out of Hagerstown airport, and her sister picked her up from the airport in Florida. She was very excited. Mia made the trip and with coordination between the sister, provider, SC, and airport personnel, all went smoothly. She would like to go again.
More Communication in White Haven Center White Haven has obtained a second device and has been working on this device with Pat. Consideration: Staff suggests Pat might benefit from finding ways to assist her in communicating more. Perhaps a professional assessment could help her communicate. Response: SC met with a White Haven Qualified Intellectual Disability Professional and Pat to review consideration. Based on an assessment completed by a Speech Pathologist, White Haven obtained a communication device for her that announces her name in a conversation. White Haven has since obtained a more advanced, second device and has been working on it with Pat. The new device can assist her in choosing preferred activities, by giving her choices to choose from. Her team plans to continue to work on this device with her and to test other devices, as necessary. Pat agrees with this plan.
Paying Respects in Crawford County Andrew was excited and agreed to go with staff on Memorial Day. Consideration: Andrew identified, "I would like to visit my grandfather s grave to pay my respects." Response: A team meeting was held and Andrew was asked where his grandfather was buried. He was not sure, but he said it was in a cemetery outside the village of Kane. His team named the cemeteries and he said he thought it was Forest Lawn Cemetery. Andrew was very close to his grandparents who raised him. His staff said that they could take him to the grave site and suggested they go on Memorial Day. Staff also suggested that a flower could be planted at that time. The team agreed that Andrew could also work on coping skills during the site visit. Andrew was excited and agreed to go with staff on Memorial Day.
Winter Swimming in Northampton County Jayden can access swimming during the winter months. Consideration: Staff informed the IM4Q team of Jayden s love for swimming. They shared that he may benefit from an activity or vacation centered around water activities for his enjoyment. Response: Jayden enjoys visiting local lakes and pools, during day program hours, in the summer months. His Community Living Arrangements provider purchased a membership to the YMCA so he can access swimming during the winter months. The YMCA has an indoor pool that he can enjoy a few times per week.
Healthy Eating in Lawrence County Tyler feels much better. Consideration: Tyler s sister requested assistance for Tyler to learn to cook simple meals. Response: Tyler was able to get family to come over every other Saturday so he could learn to cook new and easy meals. He was doing so well that he gained more weight than was healthy. This led to educating him on healthy choices and enrolling him in an exercise program. Tyler lost 10 pounds and feels much better.
Disney Vacation & a Ring - Fayette Patty goes to Disney and gets a ring. Consideration: Staff would like to see Patty go on a Disney Vacation. It may be possible to link the family/home/staff up with the variety of ID Vacation specialty companies that would help provide a goal for Patty to travel in the future if possible. Response: It was reported by the SC that she enjoys vacations and attended Disney in 2018. She has been there twice. Consideration: Karen stated she would like to buy a ring. It is my understanding that Karen loves rings. Response: She has gotten new rings as a result from her IM4Q interview.
China Experience in Philadelphia Tim has a China Experience. Consideration: Tim said he would like take a trip to China one day. Response: The team discussed exploring this request on a smaller scale. Tim will work with staff and plan a trip to China Town in Philadelphia. The architecture, atmosphere, museums, and restaurants will offer a look into the Chinese culture. Tim was extremely excited with this plan. Tim and his staff went for a day trip to visit China Town in Philadelphia. Tim reported that he had an excellent day. Tim explored the shops, had lunch in a nice restaurant (tried to use chopsticks), and walked around and looked at the architecture and murals. Tim will visit the area again in the fall.
Sleeping Better in Northumberland Person got a new bed. Consideration: Individual stated that he was having trouble sleeping because there was something wrong with his bed. When he showed the monitors his bedroom, they could see that there was a problem with his bed so they wrote a consideration stating that the individual might benefit from having a new bed. Response: The following month he was shopping for a new bed. I understand that it has been delivered and that he is sleeping better now.
House Problem in Bedford-Somerset, Cambria, Blair, Centre House problems resolved. Major Concern: Person had lots of problems with broken things at apartment, with sparks from outlets when plugging things in that landlord would not fix and something needed to happen Response: Moved, and she and her fianc are renting to own, and the house has no safety hazards
Financial Help in Bedford-Somerset, Cambria, Blair, Centre Financial Help comes in a job. Consideration: Woman needs financial assistance for her daughter s childcare as she can not afford it. Response: She started a new job at a school cafeteria and no longer needs childcare as she starts work after her daughter leaves for school and is home before her daughter gets home.
Keeping an Apartment Clean in Bucks Cleaning company to the rescue. Consideration: Monitors feel that Brian needs some help with maintaining his apartment, has there been any discussion regarding an outside cleaning service. His health, eyesight and age could be a barrier to him being able to do this? Response: Brian now has a cleaning company come into the home once a month to do a thorough cleaning of his apartment. He has also purchased a Roomba/iRobot to vacuum and keep his floor clean.
Finding a Home in Delaware New living arrangement. Consideration: Sam and his Father want to see a change in residential situation. Response: Sam has successfully moved into a group home. He has moved and is thriving at such. He has made new friends and is very happy in the new environment. His father is also very happy with this change.
State Center Consideration Getting a magazine subscription. Consideration: Woman resident wanted a magazine subscription Response: As she is interested in food a food magazine subscription was ordered
YOU CAN MAKE A DIFFERENCE If you do not write a consideration(s) no change will occur in a person s life and an opportunity has been missed. Everyone s life can have improvement in it IM4Q is more than an interview it s about change in a person s life, as well as system change. Don t miss the opportunity write considerations, make a difference!
