Survey Findings on Residential Needs and Options in Prosper Fingal Family Forum
A survey conducted in Prosper Fingal Family Forum in February 2016 revealed key insights on residential needs and options for families in crisis situations and individuals with disabilities. With a focus on raising awareness and lobbying for funding, the survey identified immediate residential care needs and outlined characteristics of families requiring urgent attention. Key findings highlighted the challenges in transitioning from care institutions to community living, emphasizing the importance of sustainable support systems and new environments. The survey response from 164 participants out of a possible total of 270 indicated a 60% engagement rate, with service locations across various areas showing differing levels of support. These findings will inform future strategies and actions to address the housing crisis and provide necessary residential support.
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Survey of Residential Needs and Options Prosper Fingal Family Forum February 2016
Context From Care Institutions to Community living .. Not for Everyone - Residential Care organised (with difficulty) in Family Crisis situations or for People with very severe disabilities (amongst a range of Providers) People with disabilities are living longer .. Recession - Funding Crisis diminishing resources from other sources. Reductions in Religious Communities previously providing Care WAITING LISTS lengthen Family Forum engaged with this issue for past year External Context Major National Housing Crisis Uphill Battle Addressing problems in Congregated Settings divert issue. No New Places! Now 38 Families experiencing crises in Residential Care Our Survey indicates a further 20 families will need Residential support over next five years The Parent Forum decides to concentrate efforts and resources on a Strategy and Action to raise awareness and lobby for funding.
What we set out to do? Residential Care Views and Options Discussion in Forum and smaller Consultation Group Agreed to undertake Survey taking account of views expressed (Outline presented) We asked People to reflect on the current situation (informs about Crisis family circumstances and needs over next five years) and imagine/anticipate the near future (over next ten years or sometime in the future). We looked for the following information: Profile of Family Members and Parents Current Living Arrangements Support in the Home Sustainability of these arrangements Future Arrangements (Continue/Not in Family Home or other arrangements) Future Residential Care Needed in What Environment? Level of Residential Support Needed When Support is needed Are Family members involved in Care Survey results to Inform Election, Lobbying and Budget Strategies now and in the future
Survey Response - 164 of a possible total of 270 or 60% Service Location Portmarnock Seatown Road Rush Skerries Piercetown Howth Balbriggan Main St (Swords) North Street (Swords) 51 26 33 11 8 7 7 2 19 86% 54% 69% 65% 42% 78% 78% New service 31%
Key factors outlining Residential Needs based on Crisis Situations and Survey results Key Characteristics of Families in need of most immediate residential care Parents and Carers An aging population. Two Carer and One Carer families Family Members with Disabilities - an aging population with varying levels of disability and inherent challenges Extent of Family Home residence and Parental Support systems Sustainability of current situation New Environments needed
What we know about Families in need of Immediate Care Prosper Fingal has currently identified 38 service users as being in need of a residential place immediately. (19 of these families responded to the Survey) Residential Situations No of Clients No Parents, Living with a Sibling or a Relative 6 Living with a Single Parent, some of whom are elderly or have a Medical condition Living with both Parents, some of whom are elderly or have a Medical condition Living with Foster Parents 14 17 1 Total 38 Age Range of Clients in Residential Care 20-29 years 7 30-39 years 18 40-49 Years 7 50-59 years 4 60-69 years 1 Total 37 Source - Prosper Fingal June 2015
Family Carers by Age Group (No) 40 40 34 35 30 25 20 15 15 14 10 8 5 7 5 5 1 5 6 3 0 0 2 4 2 2 Two Carer family One Carer Family Brother Carers Sister Carers Under 45 yrs 45-54 yrs 55-64 yrs 65-74 yrs 75+ yrs
Family Members by Age Group and level of Disability (No) Mild Moderate Severe V Severe 44 45 40 35 30 27 23 25 22 20 15 9 9 10 6 4 4 3 3 5 2 2 1 0 0 18-24 25-34 35-44 45-54 55-64 65-74
Age, Severity of Disability and Carer Status 52 21 2 17 33 7 1 24 6 4 2 5 6 8 6 1 3 6 3 2 1 2 18-24 25-34 35-44 45-54 55-64 Mild Moderate Severe V Severe
Where the Family member is currently Living Family Home with one parent Family Home Sibling and Parent Independent Home Family Home with two parents Sibling Home Supported Group Home Family Home with Sibling Relatives Home Nursing Home
Who is supporting the Family Member? Supported by 3% 1% 5% 3% 3% Parents alone Parents with Family Members Parents with Professional Staff Sibling Alone Sibling with Parent Sibling with other Siblings Sibling with Professional Staff Sibling with other Professional Staff Professional Staff with Parents Professional staff with Siblings Other - Relative 1% 2% 2% 1% 45% 4% 30%
Sustainability of current Living Arrangements Chart Title 6 5 75+ 5 1 0 25 65-74 9 2 32 7 12 7 55-64 28 15 9 4 1 3 45-54 11 4 5 2 0 5 10 15 20 25 30 35 Nees to change Ok for Now but need to change in the future Permanent
When change is needed? 5 25 25 21 6 20 18 6 5 16 6 15 3 2 12 11 2 9 10 8 2 1 1 1 4 5 3 3 2 2 2 1 1 0 0 45-54 55-64 65-74 75+ ASAP Within 5 yrs Within 10 yrs Sometime in the Future
Future Arrangements Home No longer live in the Family Home 54 Continue to Live in family home but may need to change 74 Continue to Live in the Family Home 14 0 10 20 30 40 50 60 70 80
Preferred Future Residential Care Environment Don't Know 5 Nursing Home 2 Group House 50 Shared Accommodation 41 Semi-Independent Living 16 Independent Living 12 0 5 10 15 20 25 30 35 40 45 50
Level of Residential Support Needed V Severe 16 Severe 36 Moderate 69 Minimal 19 0 10 20 30 40 50 60 70
Summary Survey contains revealing information not previously known but which now needs to be highlighted EVERYONE NEEDS TO KNOW. Crisis Families Ageing Populations (Carers and family members with disabilities) Changing and increasing nature and severity of disability with ageing Major challenges to change Status Quo (Parental support and Home-based care) to Preferred Options for the future Cuts in funding major hurdle/challenge in the future. Need to increase Resources Parents seeking best possible residential care and support in the future We want PROSPER FINGAL to be central to the development of future residential care options ELECTION TIME NOW SIGNIFICANT OPPORTUNITY TO BUILD AWARENESS AND LOOK FOR CHANGE AND RESOURCES
