Simplifying Personal Research Data Workflow for Researchers
This presentation explores the importance of managing personal research data effectively, highlighting challenges such as GDPR compliance and ethical considerations. It emphasizes the need for researchers to handle data securely, obtain consent, and conduct privacy impact assessments to ensure data protection. The workflow outlined helps researchers navigate complexities and ethical boundaries, promoting better sleep and peace of mind.
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Presentation Transcript
The Personal Research Data Workflow Alastair Dunning Head, Research Data Services, TU Delft Library Head, 4TU.ResearchData 28th January 2020 International Privacy Day Event
2 Data Horror Week Getting the birthdate wrong for 100s of survey recipients https://www.lcrdm.nl/horror-family-stress
3 The implementation of the General Data Protection Regulation (GDPR) raises a series of challenges for scientific research, in particular for research that is dependent on data https://www.europarl.europ a.eu/RegData/etudes/STUD /2019/634447/EPRS_STU(2 019)634447_EN.pdf
4 1 in 5 TU Delft researchers hold personal research data https://openworking.wordpress.com/2019/12/02/research-data-management-survey-2019-the-results-are-here/
5 Connecting . Data Management Privacy Ethics
6 Personal Research Data workflow This workflow makes it as simple as possible for researchers to comply with all requirements regarding data management, privacy and human research ethics. https://www.tudelft.nl/en/library/current-topics/research-data-management/r/manage/confidential-data/personal-research-data/
7 Worry less and sleep better Worries? Complexities? Ethical boundaries? Workflow helps you come to terms with issues before they become problems
8 All projects with personal data Human Resource Ethics Committee Data Management Plan Are subjects subjected to risk given the potential benefits? Have subjects or participants been adequately informed and given free consent? How is data being created? How is data being stored? Who can access it during and after a project? Data Privacy Impact Assessment Research Ready to Go Will personal data be processed? Will data sets be combined or matched?. .
9 More detailed version of the workflow https://www.tudelft.nl/en/library/current-topics/research-data-management/r/manage/confidential-data/personal-research-data/
10 Before research starts - though some parts can be modified during a project Provides assurance to funders Doing Part 1, will make Part 2 easier, and then Part 3 Data Stewards as first point of contact Separate documents for each step - Long-term - making the passing of info even easier Personal Research Data Workflow
Data Management Plan 1 Required by most funding bodies; also part of TU Delft Research Data Framework Policy DMP Online provides a template Faculty Data Steward provides help
Data Privacy Impact Assessment 2 Under the General Data Protection Regulation (GDPR), a Data Protection Impact Assessment (DPIA) is carried out for high- risk data processing. Privacy team at ICT will help with pre- screening and completion of DPIA if required
Human Research Ethics Committee (HREC) 3 Compliance with HREC embedded in forthcoming TU Delft Code of Conduct HREC first uses a checklist to determine whether the proposed research poses more than a minimal ethical risk Academic Integrity Officer to be appointed in 2020
The Personal Research Data Workflow Alastair Dunning Head, Research Data Services, TU Delft Library 28th January 2020 International Privacy Day Event
