Integrated Self-Management Intervention for Adolescents with Polycystic Ovary Syndrome
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FEBRUARY 27, 2019
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Research at the SON is designed to improve the health
of underserved, vulnerable, and under-studied
populations.
•
This approach supports the idea that nursing research
underpins graduate education and advances the science
of health promotion and disease prevention.
Background & Rationale
•
PCOS affects 7-18% of reproductive-age
women (manifests during adolescence)
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Associated with multiple morbidities
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Often distressing physical manifestations
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Adverse impact on mental health, which in
turn may impact self-management
Study Design & Population
•
Study Design
–
Phase 1: Series of focus groups to explore self-management and
develop a mindfulness-based healthy lifestyle intervention
–
Phase 2: Pilot RCT testing Project WOW vs Enhanced Usual Care
Control
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Population
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Phase 1: Adolescents (14-18 years) with PCOS and parents of
adolescents with PCOS
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Phase 2: Adolescents (14-18 years) with PCOS, OR (obesity AND
secondary amenorrhea), OR (excessive and frequent menstruation)
Lessons Learned
•
Focus groups provided important insights to both individual and family self-
management of PCOS & significant contribution to final intervention
–
Focus on health promotion vs. weight loss (Project Working to Optimize Wellness: Project
WOW)
–
Inclusion of sleep as a primary intervention target
•
Design change necessary due to focus group participants requesting to be
in the intervention
•
Using mindfulness as a foundation of paying attention to their thoughts and
current health behaviors with non-judgment and self-compassion has been
highly acceptable to participants (and contributed to health behavior change
and improved psychological well-being).
Challenges
•
Need for bilingual staff and materials from the
early stages
•
Clinic-based recruitment inefficient for group-
based interventions
•
Scheduling of group interventions challenging
•
Recruitment methods missing many vulnerable
adolescents (e.g., undiagnosed, lack of access)
Ways of Addressing Challenges
•
Request necessary resources up front
•
Be creative and plan for as varied of
recruitment methods as possible
•
Alternate intervention delivery mechanisms
–
Utilizing technology platforms for delivery may not
be ideal, but…
•
Voltaire: “The best is the
enemy of the good.
•
Confucius: “Better a
diamond with a flaw than a
pebble without.”
•
Shakespeare: “Striving to
better, oft we mar what’s
well.”
Don’t let the
perfect be
the enemy
of the good
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Research led by Cara C. Young focuses on developing a mindfulness-based healthy lifestyle intervention for adolescents with polycystic ovary syndrome (PCOS) and their parents. The study aims to improve self-management capabilities among adolescents with PCOS, a condition that impacts both physical and mental health. Lessons learned from focus groups highlight the importance of health promotion and mindfulness in enhancing overall well-being, despite challenges like the need for bilingual staff and recruitment inefficiencies.
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Presentation Transcript
FEBRUARY 27, 2019 AN INTEGRATED SELF AN INTEGRATED SELF- -MANAGEMENT INTERVENTION FOR ADOLESCENTS INTERVENTION FOR ADOLESCENTS WITH POLYCYSTIC OVARY SYNDROME WITH POLYCYSTIC OVARY SYNDROME MANAGEMENT Cara C. Young, PhD, RN, FNP-C Assistant Professor
Mission of the School of Nursing (SON) Research at the SON is designed to improve the health of underserved, vulnerable, and under-studied populations. This approach supports the idea that nursing research underpins graduate education and advances the science of health promotion and disease prevention.
Background & Rationale PCOS affects 7-18% of reproductive-age women (manifests during adolescence) Associated with multiple morbidities Often distressing physical manifestations Adverse impact on mental health, which in turn may impact self-management
Study Design & Population Study Design Phase 1: Series of focus groups to explore self-management and develop a mindfulness-based healthy lifestyle intervention Phase 2: Pilot RCT testing Project WOW vs Enhanced Usual Care Control Population Phase 1: Adolescents (14-18 years) with PCOS and parents of adolescents with PCOS Phase 2: Adolescents (14-18 years) with PCOS, OR (obesity AND secondary amenorrhea), OR (excessive and frequent menstruation)
Lessons Learned Focus groups provided important insights to both individual and family self- management of PCOS & significant contribution to final intervention Focus on health promotion vs. weight loss (Project Working to Optimize Wellness: Project WOW) Inclusion of sleep as a primary intervention target Design change necessary due to focus group participants requesting to be in the intervention Using mindfulness as a foundation of paying attention to their thoughts and current health behaviors with non-judgment and self-compassion has been highly acceptable to participants (and contributed to health behavior change and improved psychological well-being).
Challenges Need for bilingual staff and materials from the early stages Clinic-based recruitment inefficient for group- based interventions Scheduling of group interventions challenging Recruitment methods missing many vulnerable adolescents (e.g., undiagnosed, lack of access)
Ways of Addressing Challenges Request necessary resources up front Be creative and plan for as varied of recruitment methods as possible Alternate intervention delivery mechanisms Utilizing technology platforms for delivery may not be ideal, but
Voltaire: The best is the enemy of the good. Confucius: Better a diamond with a flaw than a pebble without. Shakespeare: Striving to better, oft we mar what s well. Don t let the perfect be the enemy of the good
THANK YOU THANK YOU
