Data Submission in Cancer Registry Systems

Objectives
Discuss the purpose and benefit of submitting
data
Identify the organizations
 data is submitted to
Review the type of data submitted
Explain the cancer registrar’s role in data
submission
Purpose and Benefit
Data goes into a larger pool of data
Outcomes
Benchmarking
Decision making
Planning
State Central Cancer Registries
Designed to:
Monitor cancer trends over time
Determine cancer patterns in various populations
Guide planning and evaluation of cancer control
programs
Assist public health professionals
Beyond State Reporting
North American Association of Central Cancer
Registries (NAACCR)
Surveillance, Epidemiology, and End Results
(SEER)
National Program of Cancer Registries (NPCR)
Programs by Funding Status
https://www.cdc.gov/cancer/npcr/public-use/index.htm
Commission on Cancer (CoC)
Accreditation Program
Establishes standards and guidelines
Collects high-quality data
Develops effective educational interventions
Use data to measure cancer care quality
Submit data to the Rapid Quality Reporting
System (RQRS)
Requires annual data submission
 to the National
Cancer Database (NCDB)
Types of Data Submitted
Patient demographics (limited info to NCDB)
Primary tumor site
 (location of origin)
Tumor morphology (histology)
Cancer stage
 (extent of tumor spread)
Initial course of therapy
 (treatment)
Outcomes (vital and cancer status) 
The Cancer Registrar’s Role
Compile data files of abstracts
Run and clear edits for errors
Submit data securely and electronically
Comply with deadlines
Summary
Data collected used for outcomes,
benchmarking, decision making, planning
Standard-setting organizations require
different levels of demographics
Cancer registrars collect and submit the data
Thank You!
NCRA Education Foundation
www.ncraeducationfoundation.org
NCRA
www.ncra-usa.org
Slide Note

This presentation, “Data Submission,” is sponsored by the National Cancer Registrars Association Education Foundation.

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Data submission in cancer registry systems serves the purpose of contributing to a larger pool of information for monitoring cancer trends, determining patterns, guiding program planning, and assisting public health professionals. Organizations like the State Central Cancer Registries and national programs such as NAACCR, SEER, and NPCR play vital roles in collecting and utilizing this data. Cancer registrars play a crucial role in compiling, editing, and securely submitting patient data on demographics, tumor details, cancer stage, treatment, and outcomes. The data collected is utilized for outcomes analysis, benchmarking, decision-making, and planning in cancer care. Accreditation programs like the CoC ensure high-quality data collection and standards compliance for measuring cancer care quality.


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  1. Objectives Discuss the purpose and benefit of submitting data Identify the organizations data is submitted to Review the type of data submitted Explain the cancer registrar s role in data submission

  2. Purpose and Benefit Data goes into a larger pool of data Outcomes Benchmarking Decision making Planning

  3. State Central Cancer Registries Designed to: Monitor cancer trends over time Determine cancer patterns in various populations Guide planning and evaluation of cancer control programs Assist public health professionals

  4. Beyond State Reporting North American Association of Central Cancer Registries (NAACCR) Surveillance, Epidemiology, and End Results (SEER) National Program of Cancer Registries (NPCR)

  5. Programs by Funding Status https://www.cdc.gov/cancer/npcr/public-use/index.htm

  6. Commission on Cancer (CoC) Accreditation Program Establishes standards and guidelines Collects high-quality data Develops effective educational interventions Use data to measure cancer care quality Submit data to the Rapid Quality Reporting System (RQRS) Requires annual data submission to the National Cancer Database (NCDB)

  7. Types of Data Submitted Patient demographics (limited info to NCDB) Primary tumor site (location of origin) Tumor morphology (histology) Cancer stage (extent of tumor spread) Initial course of therapy (treatment) Outcomes (vital and cancer status)

  8. The Cancer Registrars Role Compile data files of abstracts Run and clear edits for errors Submit data securely and electronically Comply with deadlines

  9. Summary Data collected used for outcomes, benchmarking, decision making, planning Standard-setting organizations require different levels of demographics Cancer registrars collect and submit the data

  10. Thank You! NCRA Education Foundation www.ncraeducationfoundation.org NCRA www.ncra-usa.org

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