Enhancing Data Linkage Systems for Safe and Effective Information Sharing
Data linkage plays a crucial role in answering society's questions, but current processes can be lengthy and inefficient. The key to a safe and effective data linkage system lies in engaging the public, advocating for safe data use, and harmonizing information governance across governmental and statistical bodies.
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Presentation Transcript
Data linkage review findings Data linkage review findings What would a safe and effective data linkage system look like? Catherine Bromley, Kerstin Hinds, Jo Mulligan and Job de Roij July 2018
Why are we interested in data linkage? Statistics add value when they answer society s questions. Many questions cannot be answered without sharing and linking data. Without a focus on the quality of the data, the results could be misleading. Custodians of public data must demonstrate their trustworthiness by safeguarding data robustly and being open to public scrutiny.
Where are we now? Many great examples of data linkage projects in government but, it can still be a lengthy, complicated and inefficient process Digital Economy Act 2018 creates new legal basis for public bodies to share data with ONS for statistics production, or for statistical research by academics, providing it is in the public interest High user aspirations for the DEA to enhance data sharing and linkage
Essential outcomes for a safe and effective data linkage system
T Q V Engage with the public Use consistent, clear & coherent messages Advocate for safe data use Keeping data safe statements Develop an overarching framework
T Q V Engage with the public Use consistent, clear & coherent messages Statistics producers Advocate for safe data use Keeping data safe statements Develop an overarching framework Government
T Q V Exploit existing networks to identify priorities Connect analysts, policy makers and external expertise Government analysts Explore technological solutions
T Q V Harmonise information governance Government Increase seniority of sign-off Develop risk assessment tools Statistics producers Publish transparency information GDPR guidance OSR - ICO
T Q V Design & monitor processes with users Data providers Signpost users to other data Review of health data user experiences OSR
T Q V Work with data owners to remedy gaps Publish standard information about linkage process GSS Ensure statisticians input to data system design Feedback loops between data users and collectors
T Q V Recognise resource needs Coordinate infrastructure investment GSS Minimise data extraction costs Data linkage skills strategy Recognise data access support staff CPD needs Safe setting providers Safe settings innovations
Next steps Conversations with key groups to take the recommendations forward Aiming to publish a report with these findings in August New Code of Practice data governance guidance Thoughts welcome Thank you catherine.bromley@statistics.gov.uk
