Bimonthly Volunteer Webinar Agenda and Updates - May 2018
The bimonthly volunteer webinar held in May 2018 featured various updates including ambassador updates, advocacy updates, fundraising updates, and a Q&A session with Jenni Grover on thriving with pain. Participants were encouraged to engage on World Autoimmune Arthritis Day and promote Pain Awareness Month initiatives. Additionally, housekeeping details were provided for the smooth conduct of the webinar and feedback was encouraged through a survey.
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Presentation Transcript
Bimonthly volunteer webinar May 15, 2018
Agenda Welcome (1-2 minutes) Ambassador update Jacki Drexel (5-7 minutes) State advocacy update - Shaina Smith (5 minutes) Federal advocacy update - Cindy Steinberg (5 minutes) Fundraising update - Casey Cashman (3-5 minutes) General updates from other staff (3-5 minutes) Questions - Open (3-5 minutes) A Q&A with Jenni Grover about Thriving with Pain Jenni Grover (20-30 minutes)
Housekeeping You can ask questions by typing them into the control panel at right under Questions . We will answer questions at the end of all the department updates and then during the Q&A A recording of this webinar will be provided in the newsletter on June 1 Please take our feedback survey at the end!
Ambassador update Lori Monarca and Jaclyn Drexel, Co-directors of the Ambassador Network
World Autoimmune Arthritis Day #WAAD2018 REV Up your engines and fuel our race to raise awareness on May 19th beginning at 6am EST until May 21st at 5am EST We need your help to drive over 47,000 miles in 47 hours! Here s how: Like, Share, Tweet, Tag us in all your posts on FB, Twitter, & Instagram - include these hashtags: #WAAD2018 and #USPain. We will be sharing posts across our social media accounts that you can use during this time or you can write your own with these hashtags as well!
PAM Updates Proclamations: Most offices have specific requirements/deadlines. Start requesting yours now! Light up the Landmarks: Join our team of ambassadors who are focusing on this part of PAM! We need your help reaching out but are here to support you through this specialized team of volunteers. Beautify in Blue: You should be contacting your community now to obtain permission to participate for this year! For more information, visit: www.uspainawarenessmonth.com
Pain Awareness Month Goals for September 2018 Proclamations - 25+ states Beautify in Blue - 25+ kits sent Light up Landmarks - 75+ locations Letters to the Editor to explain local events that are happening
Stay connected... How do you get the latest information? Subscribe to our newsletter Visit the current opportunities section of the website Follow us on social media Check out our updates on the Pain Awareness Month website Register for our webinars Keep us informed on your participation through the forms in our ambassador toolkit!
State advocacy update Shaina Smith Director of State Advocacy and Alliance Development
State Advocacy Update Ohio outreach for HB 72 / SB 56 Wrapping up end-of-session in many states New Jersey OOP bill NEW online engagement
Federal advocacy update Cindy Steinberg National Director of Advocacy and Policy
Federal Advocacy Pain Management Best Practices Interagency Task Force 28 Appointeesannounced; Cindy was appointed Charge: Determine gaps, inconsistencies in best practices among federal agencies Recommend fixes Provide public opportunity to comment Develop a strategy for disseminating info about updated best practices How Different from IPRCC? IPRCC is focused on pain research Charge: Further our fundamental understanding of pain Improve treatment strategies & options through research This Task Force is focused on current pain management best practices
Federal Advocacy First Public Meeting May 30 & 31st in Washington DC Anyone can attend Address: HHS, 200 Independence Ave, Great Hall There will be an opportunity to speak as well as submit written comments Strongly Urge People with Pain to Attend and Submit Oral or Written Comments Recommendations coming out of this Task Force could very significantly affect pain care Topics to comment on: CDC Guidelines issues with them good & bad, how they have affected you FDA Actions ie. more heavily weighing risks vs benefits of opioids in future drug approvals CMS decisions on what they will cover for pain treatment What do you believe are best pain management practices ?
Fundraising update Casey Cashman Director of Fundraising
Fundraising First Penny for Pain is taking place in a high school for spirit week in CT this week Real Hope Real Heroes Gala is June 2nd Working with a few MLB teams to host fundraisers at games
Other updates Nicole: The INvisible Project: Medical Cannabis edition is available now! Migraine 2nd edition will be ready in June; Osteoarthritis and Chronic Low Back Pain edition will be in late-June. What's in the pipeline? Pediatric 2nd edition. If you know someone who might want to participate, email: nicole@invisibleproject.org. If you would like to receive a copy of a current or upcoming INvisible Project, send the best mailing address and the edition you would like to have to: nicole@invisibleproject.org.
Other updates Gwenn: Chicago CPSG training is now closed. Next training will be in October in NYC. Pain Connection Live conference calls are held 3 times per month www.painconnection.org
Questions? You can type in questions using the navigation bar at right. Or, feel free to reach out by email afterward: Ambassador program -- lori@uspainfoundation.org & jaclyn@uspainfoundation.org State advocacy -- shaina@uspainfoundation.org Federal advocacy -- csteinberg@rcn.com Fundraising -- fundraising@uspainfoundation.org General -- contact@uspainfoundation.org
Reminders If you haven t signed up as an advocate/ambassador yet, you can do so here: www.uspainfoundation.org/get-involved To get ambassador credit for attending today s webinar, visit: https://tinyurl.com/USPainActivity
Keynote presentation A Q&A with Jenni Grover about Thriving with Pain
Jenni Grover Jenni is the founder of ChronicBabe.com, a support network, coaching program, and blog She is author of the new book, ChronicBabe 101: How to Craft an Incredible Life Beyond Illness She also works for U.S. Pain as an editorial consultant for INvisible Project
ChronicBabe 101: How to Craft an Incredible Life Beyond Illness Don t forget to check out Jenni s book, available on Amazon (paperback OR Kindle editions) Use smile.amazon.com to support U.S. Pain! Or visit her online at www.chronicbabe.com
Next webinar Next volunteer webinar will be July 17 at 1 pm EST with Peter Abaci, MD Registration link will be available soon check your inbox for updates! Thanks for joining us!
