What Matters To Me Guidebook: Sharing Personal Stories and Preferences

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Exploring the importance of the "What Matters To Me" guidebook in preserving vital information about individuals, especially those with advanced symptoms of dementia. This person-centered tool helps care partners understand the person's background, preferences, and what matters to them, enhancing meaningful relationships and care.


Uploaded on Sep 10, 2024 | 0 Views


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  1. What Matters to Me Photo from the past Photo from the present Name Please call me - 2

  2. Why this storybook is important to me. There is no receiver and there is no giver of care. Care is found in relationships. ~ Zen saying The ability to personally communicate one s history, background, preferences and what is important may become impaired for individuals living with advanced symptoms of dementia. The What Matters To Me guidebook was developed so this vital information concerning one s personhood is not lost or overlooked. What Matters To Me is a valuable, person-centered tool that shares important information so care partners can get to know the person and what matters to them. 3

  3. Completing the Storybook There is no right or wrong way to complete the guidebook. Some people may wish to independently collect the information while other people may find it enjoyable and helpful to work with others to complete it. What Matters To Me is provided in an editable format to make it easy to customize the guidebook for you. You may want to expand on some sections, shorten or delete other sections. Use what is meaningful to you. We recommend adding pictures where possible. Pictures can be worth a thousand words! 4

  4. ABOUT ME The ABOUT ME section includes information I want you to know about me. 5

  5. My birth date is: _______________. A photo of me celebrating. My favorite birthday memories. ________________________ ________________________ ________________________ ________________________ ________________________ 6

  6. This is how I would describe myself - 7

  7. Things I want people to know about me - 8

  8. I would like to be remembered for - 9

  9. These are my special skills and talents - 10

  10. These are things I like to do now - 11

  11. These are things I would like to do but I don t do now - 12

  12. These are things that give me a sense of purpose - 13

  13. My music preferences are - Some suggestions if needed big bands, pop, rock, jazz, blues, fold, country-western, opera, spirituals/gospel, sing-alongs, new age, rap, karaoke. 14

  14. My reading preferences are - Some suggestions if needed biography, current events, cooking, history, humor, mystery & crime, science fiction, poetry, religious, sports. 15

  15. These are spiritual, religious, cultural practices that are important to me - Some suggestions if needed special prayers, meditations, favorite readings, favorite holy days or celebrations. 16

  16. These are the events, holidays I celebrate - 17

  17. These are people who visit me regularly. Names and photos 18

  18. I like to talk on the phone to - Name Phone Number 19

  19. I like to email or Facetime with - NAME/ADDRESS 20

  20. My favorite possessions, photos and mementos. 21

  21. My favorite sports or athletics - 22

  22. My fashion and style - Describe what you like to wear and how you like to look. Add photos if you have them. 23

  23. Special awards I have received - 24

  24. Some favorite memories I have - 25

  25. My favorite mealtime - My favorite meal of the day My favorite restaurants for eating out - 26

  26. Foods I like and dont like - Foods I like: Foods I do not like: Sweets Sweets Treats Treats Meats Meats Fruits &Vegetables Fruits &Vegetables 27

  27. These are food allergies I have - 28

  28. Other things that are important to me about mealtimes - 29

  29. My care preferences. 30

  30. My daily routines include - (For example, are you a morning person or a night owl? Do you like to sleep late or get up early? Do you like to say prayers or have coffee before breakfast?) 31

  31. Things I would like to be reminded about - Important phone numbers: Other 32

  32. My dementia-related symptoms include - 33

  33. Accommodations I use to support my dementia symptoms - If suggestions needed Alexa, Echo, digital watch, iPhone, iPad, tablet, computer, apps. 34

  34. You can best help me manage my dementia symptoms by - 35

  35. These are things that make me happy - 36

  36. These are things that can make me feel distressed or sad - I express distress or sadness by 37

  37. These are things that help relieve my feelings of distress or sadness - 38

  38. PERSONAL HISTORY The PERSONAL HISTORY section includes information about my background. 39

  39. My Early Years Details about where I was born. This is a photo of where I grew up. 40

  40. Growing Up My Family Brother(s) ________ Name(s) ___________________________________________ Sister(s)________ Name(s) ___________________________________________ Others that lived with us include (such as animals and/or other family or friends): 41

  41. Favorite memories growing up - 42

  42. These are places where I lived in the past - 43

  43. These are my favorite childhood stories and memories - 44

  44. My school years I attended these schools. My favorite memories of my school years are: 45

  45. These are the things I liked to do when I was younger - 46

  46. These are things I didnt enjoy when I was younger - 47

  47. Marriage I married_________________ on _________, _____. What we looked like then. Us in more recent years. 48

  48. These are photos and stories about our life together - Details: Details: Photo Photo 49

  49. Children Child/Children _________ Their name(s) - 50

  50. Photos of my children - 51

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