Section 504 Plans for Students with Celiac Disease

 
Andrea Levario, JD
former American Celiac
Disease Alliance
 
Janelle Smith
CDF Registered Dietitian
Nutritionist
 
August 24, 2016  - 1 pm PST
 
Today’s Webinar
 
504 Plans with Andrea Levario, JD
 
School food service basics
 
Nutrition and recipes for every grade
 
504 Plans for Students with
Celiac Disease
Andrea Levario, J.D.
 
Overview
 
504 Plan
Process
Partnership
Protection for Individual Student
 
Federal Disability Laws
 
- Applies to public schools
 
- Applies to most private
schools
 
- Applies to public schools
 
- Applies to limited private
schools
 
 
Part of the Rehabilitation Act of 1973
 
Federal civil rights law
 
All qualified persons with disabilities
within the jurisdiction of a school
district are entitled to a 
free
appropriate public education
 
What is Section 504?
 
Celiac Disease = Disability?
 
 
Must meet this standard –
 
The individual student has a physical or mental
impairment which substantially limits one or
more major life activities.
 
 
“Major Life Activities”
 
Walking
Seeing
Hearing
Speaking
Breathing
 
Learning
Working
Eating
Caring for one’s self
Performing manual tasks
 
The Process
 
Request for services
 
Student evaluation
 
Determination of eligibility
 
Plan drafted, approved, implemented
 
What to Document
 
 
Identify the disability
Explain how it restricts the child's diet
Major life activity affected
Foods to be omitted
Foods to be substituted
 
Medical Statement
 
Medical Statement 
(cont.)
 
Scope of Section 504
 
The 504 Plan
 
Objectives / goals of the plan
Meals and snacks
Bathroom access
Classroom activities (art projects)
Field Trips / extracurricular activities
 
504 Plan (cont.)
 
Communication
Emergency evacuations / shelter-in-place
Parental notification
Emergency contacts
 
Attention in the School Kitchen
 
Food prep areas
Dedicated work spaces and/or equipment
Clean and sanitize
Label reading
 
USDA  Accommodations
 
Allergies with the
potential of anaphylaxis
 
Celiac disease
 
Allergies with no
anaphylaxis
 
Food intolerances
 
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Helpful Notes for Dietitians
 
Know what the USDA meal pattern requirements
are so that you can assist the school in
developing the child’s personalized diet plan.
 
Be knowledgeable of the policies and
procedures in place for the State and local
district as they pertain to children with identified
special dietary needs
 
Resources
 
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“Voluntary Guidelines for Managing Food Allergies In
Schools and Early Care and Education Programs”
 
Thank you
 
 
USDA Meal Pattern
Requirements
 
Lunch MUST contain:
  
Breakfast MUST contain:
o
fruit
     
fruit or vegetable
o
vegetable
     
grain
o
grain
     
milk
o
protein (meat or meat substitute)
o
dairy
 
Meet limits for saturated fat, sodium, and trans fats
Grains MUST:
o
Contain at least 50% whole grain
o
Meet a minimum serving size per grade level
Dairy - includes lactose-free and milk substitutes
 
http://www.fns.usda.gov/usda-foods
 
Preschool & Kindergarten
 
High level of parent involvement
o
May need to provide all meals/snacks if caregivers are not
reliable
Ask for high amount of monitoring at meal times to
ensure gluten-containing items are not put in mouth
o
Special placemat to signify to child to only eat what’s in “their area” or
“their lunchbox”
o
Wash hands before meals
Ask for high amount of monitoring during
crafts/activities involving gluten:
o
dry pasta crafts
o
play dough
o
face paint
o
sand trays
 
Preschool & Kindergarten
Nutritional Needs
 
Except for gluten, trust your child’s
ability to feed themself
o
Children are intuitive eaters. Every meal may not be
balanced, but they will regulate their intake over
longer periods of time
o
Food aversion is common when diagnosed at a
young age. Focus on the foods he/she likes and
don’t fight with the “picky” eater
o
Make meal times fun and enjoyable with games
and positive talk
o
Work with an occupational or behavioral therapist if
needed
Catch-up Growth
o
weight-gain supplements like Pediasure
o
whole milk (lactose free if necessary), added fats like
coconut oil, nut butters
o
liquid vitamins, especially iron
 
Elementary School
1. Talk with Administration
 
File a 504 plan
Model plan at Celiac.org/Ask
School Nurse may create an “individualized nursing
plan” for bathroom passes, time laying down, etc.
Emergency kit
“Back-up lunch” (non-perishable)
Back-up underwear/pants for GI accidents
Absence excusal
Learning needs assessment or independent study as
necessary
 
Explain your child’s symptoms
Ask for advance notice of class parties, field
trips, prizes
Keep an eye out for bullying or teasing
May need bathroom pass
Give your teacher non-perishable goodies
for last-minute occasions
Volunteer for Room Mom or PTA
 
 
 
Elementary School
Elementary School
2. Work with Teachers/ Aids
2. Work with Teachers/ Aids
 
Please no classroom activities with loose flour
Wash hands before lunch
No “snack swapping” with friends (until they are
excellent at label reading)
Start teaching label-reading to your child
o
GF label and “contains wheat” are easiest to spot
o
Practice reading words from food labels!
School food service must provide EQUAL
accommodations to students with disabilities
(ensured via 504 plan)
o
Include prevention of cross-contamination in 504 plan
o
GF bread or other GF starch must be included to meet all food
groups in a balanced meal
o
Identify students in lunch line via special sticker or ID card
 
Elementary School
3. Preventing Cross-Contact
 
Elementary School
4. Inclusion & Community
 
School confidentiality and anti-bullying policy
applies to health needs
Bring GF treats for the whole class – show peers
that it tastes good!
Encourage your child to use celiac for a school
project/presentation (more later!)
Empower your child to talk about their needs
Keep snacks/frozen meals at friends’ houses
 
Kid-Friendly GF Lunchbox
 
Re-create Lunchables
Eat the rainbow in every lunch
Sneak in vegetables and fiber
 
Udi’s pizza crusts
Mission tortilla wraps
Glutino English Muffins
Enjoy Life – allergen free
products
Betty Crocker, Bisquick & Chex
help your kiddo feel normal
 
Kid-Friendly GF Lunchbox
 
Recipes on Celiac.org:
 
Loaded pizza sauce
Black bean brownies
Zucchini muffins
Tortilla wraps
Overnight oats
Pretzel-crusted chicken strips
Breakfast quiche cups
 
 
 
Middle & High School
1. Talk with the School
 
School Psychologist
School Nurse
Home Room Teacher
Extracurricular leaders
File a 504 plan
o
Access to GF food in classroom and cafeteria
o
Excused absence from activities that use gluten-containing foods
or materials, i.e. Home Ec, food science
o
Prevent cross-contamination in school food service
o
Use of microwave to heat personal meals
o
Bathroom privileges
 
Middle & High School
2. Lunch & Social Events
 
Time to be proficient at reading labels and take
more responsibility
Avoid salad bars with croutons and other crunchies,
unlabeled salad dressing, flavored nuts
Ask questions of school food service – avoid
anything without an ingredients list
Chips and other snack foods should be labeled GF
Bring your own dish to team dinners, birthday
parties, friends houses
Keep back-up snacks (non-perishable) in
backpack, locker, car
 
 
Brown Bag Lunches +
Backpack-proof Snacks
 
Nature Valley bars
NoGii bars
Frito-Lay GF labeled chips
Rudi’s tortilla wraps
Schar baguettes, multigrain bread
 
Follow us on Instagram and Facebook for many more
easy recipes and ideas!
 
@CeliacDiseaseFoundation
 
College
1. Choosing a School
 
Wish list:
Dining halls with dedicated GF products and prep
areas
Allergen labels on all dishes
Local restaurants that have GF menus
On-campus dining with GF options
 
To Dorm or Not to Dorm?
Is the dining hall accommodating?
Can you waive the dining hall fee?
Is there room for a fridge and microwave in your dorm?
Any dorms with kitchenettes?
 
 
 
College
College
2. Navigating Dining Halls
2. Navigating Dining Halls
 
Avoid salad bars with croutons and other crunchies,
unlabeled salad dressing, flavored nuts
Scrambled eggs: check ingredients and cooking
surface
Toaster bags, your new best friend
Individual condiment packets or squeeze bottles
only
Avoid shared cereal containers/bulk bins
 
Emergency rations often at convenience stores:
o
cheese sticks, hardboiled eggs, yogurt, fruit, carrots &
celery with ranch, peanut butter, nuts, plain potato chips
 
 
College
3. Social Life & The Freshman 15
 
Eat before going out with friends if you’re not sure
that there will be GF options
Bring a snack bar in your purse/pocket
Have the alcohol discussion before it’s a problem
o
No malted beverages or beer. All hard liquors ok
o
No cider from a beer tap/keg – choose bottles and cans
o
Drinking games are chance for cross-contamination
 
Late-night eating should not be in addition to a full
day of meals/snacks – spread out your meals
Limit liquid calories: smoothies, sodas, flavored
coffee drinks, alcohol
Stay active – IM sports, classes
 
Easy Dorm Food
 
GF microwavable soup
Hard-boiled eggs + cheese sticks
Yogurt parfait – Chex GF granola
Amy’s frozen meals
Progresso soups
Explore Asian noodle soups
 
 
 
 
 
CDF Resources
 
 
Celiac.org
/Webinars
Celiac.org
/Ask
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
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Explore the intricacies of Section 504 Plans in the context of students with Celiac Disease, covering the legal framework, qualification criteria, major life activities, process details, documentation requirements, and the essential role of medical statements in ensuring educational support. Gain insights into the intersection of federal disability laws, educational rights, and dietary considerations for effective management of Celiac Disease in school settings.

  • Section 504 Plans
  • Celiac Disease
  • Disability Laws
  • Student Support
  • Education Rights

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  1. Andrea Levario, JD former American Celiac Disease Alliance Janelle Smith CDF Registered Dietitian Nutritionist August 24, 2016 - 1 pm PST

  2. Todays Webinar 504 Plans with Andrea Levario, JD School food service basics Nutrition and recipes for every grade

  3. 504 Plans for Students with Celiac Disease Andrea Levario, J.D.

  4. Overview 504 Plan Process Partnership Protection for Individual Student

  5. Federal Disability Laws Americans with Disabilities Act (ADA) Section 504 Rehabilitation Act 1973 - Applies to public schools - Applies to public schools - Applies to most private schools - Applies to limited private schools

  6. What is Section 504? Part of the Rehabilitation Act of 1973 Federal civil rights law All qualified persons with disabilities within the jurisdiction of a school district are entitled to a free appropriate public education

  7. Celiac Disease = Disability? Must meet this standard The individual student has a physical or mental impairment which substantially limits one or more major life activities.

  8. Major Life Activities Learning Working Eating Caring for one s self Performing manual tasks Walking Seeing Hearing Speaking Breathing

  9. The Process Request for services Student evaluation Determination of eligibility Plan drafted, approved, implemented

  10. What to Document Identify the disability Explain how it restricts the child's diet Major life activity affected Foods to be omitted Foods to be substituted

  11. Medical Statement

  12. Medical Statement (cont.)

  13. Scope of Section 504 Class Section 504 Lunch ER Field Trips

  14. The 504 Plan Objectives / goals of the plan Meals and snacks Bathroom access Classroom activities (art projects) Field Trips / extracurricular activities

  15. 504 Plan (cont.) Communication Emergency evacuations / shelter-in-place Parental notification Emergency contacts

  16. Attention in the School Kitchen Food prep areas Dedicated work spaces and/or equipment Clean and sanitize Label reading

  17. USDA Accommodations With Approval Required Allergies with the potential of anaphylaxis Allergies with no anaphylaxis Celiac disease Food intolerances

  18. Chesterfield County, VA Middle School Gluten-Free Menu

  19. Helpful Notes for Dietitians Know what the USDA meal pattern requirements are so that you can assist the school in developing the child s personalized diet plan. Be knowledgeable of the policies and procedures in place for the State and local district as they pertain to children with identified special dietary needs

  20. Resources CDF Website Foodallergy.org Centers for Disease Control and Prevention (CDC) Voluntary Guidelines for Managing Food Allergies In Schools and Early Care and Education Programs

  21. Thank you

  22. USDA Meal Pattern Requirements Lunch MUST contain: o fruit o vegetable o grain o protein (meat or meat substitute) o dairy Breakfast MUST contain: fruit or vegetable grain milk Meet limits for saturated fat, sodium, and trans fats Grains MUST: o Contain at least 50% whole grain o Meet a minimum serving size per grade level Dairy - includes lactose-free and milk substitutes http://www.fns.usda.gov/usda-foods

  23. Preschool & Kindergarten High level of parent involvement o May need to provide all meals/snacks if caregivers are not reliable Ask for high amount of monitoring at meal times to ensure gluten-containing items are not put in mouth o Special placemat to signify to child to only eat what s in their area or their lunchbox o Wash hands before meals Ask for high amount of monitoring during crafts/activities involving gluten: o dry pasta crafts o play dough o face paint o sand trays

  24. Preschool & Kindergarten Nutritional Needs Except for gluten, trust your child s ability to feed themself o Children are intuitive eaters. Every meal may not be balanced, but they will regulate their intake over longer periods of time o Food aversion is common when diagnosed at a young age. Focus on the foods he/she likes and don t fight with the picky eater o Make meal times fun and enjoyable with games and positive talk o Work with an occupational or behavioral therapist if needed Catch-up Growth o weight-gain supplements like Pediasure o whole milk (lactose free if necessary), added fats like coconut oil, nut butters o liquid vitamins, especially iron

  25. Elementary School 1. Talk with Administration File a 504 plan Model plan at Celiac.org/Ask School Nurse may create an individualized nursing plan for bathroom passes, time laying down, etc. Emergency kit Back-up lunch (non-perishable) Back-up underwear/pants for GI accidents Absence excusal Learning needs assessment or independent study as necessary

  26. Elementary School 2. Work with Teachers/ Aids Explain your child s symptoms Ask for advance notice of class parties, field trips, prizes Keep an eye out for bullying or teasing May need bathroom pass Give your teacher non-perishable goodies for last-minute occasions Volunteer for Room Mom or PTA

  27. Elementary School 3. Preventing Cross-Contact Please no classroom activities with loose flour Wash hands before lunch No snack swapping with friends (until they are excellent at label reading) Start teaching label-reading to your child o GF label and contains wheat are easiest to spot o Practice reading words from food labels! School food service must provide EQUAL accommodations to students with disabilities (ensured via 504 plan) o Include prevention of cross-contamination in 504 plan o GF bread or other GF starch must be included to meet all food groups in a balanced meal o Identify students in lunch line via special sticker or ID card

  28. Elementary School 4. Inclusion & Community School confidentiality and anti-bullying policy applies to health needs Bring GF treats for the whole class show peers that it tastes good! Encourage your child to use celiac for a school project/presentation (more later!) Empower your child to talk about their needs Keep snacks/frozen meals at friends houses

  29. Kid-Friendly GF Lunchbox Re-create Lunchables Eat the rainbow in every lunch Sneak in vegetables and fiber Udi s pizza crusts Mission tortilla wraps Glutino English Muffins Enjoy Life allergen free products Betty Crocker, Bisquick & Chex help your kiddo feel normal

  30. Kid-Friendly GF Lunchbox Recipes on Celiac.org: Loaded pizza sauce Black bean brownies Zucchini muffins Tortilla wraps Overnight oats Pretzel-crusted chicken strips Breakfast quiche cups

  31. Middle & High School 1. Talk with the School School Psychologist School Nurse Home Room Teacher Extracurricular leaders File a 504 plan o Access to GF food in classroom and cafeteria o Excused absence from activities that use gluten-containing foods or materials, i.e. Home Ec, food science o Prevent cross-contamination in school food service o Use of microwave to heat personal meals o Bathroom privileges

  32. Middle & High School 2. Lunch & Social Events Time to be proficient at reading labels and take more responsibility Avoid salad bars with croutons and other crunchies, unlabeled salad dressing, flavored nuts Ask questions of school food service avoid anything without an ingredients list Chips and other snack foods should be labeled GF Bring your own dish to team dinners, birthday parties, friends houses Keep back-up snacks (non-perishable) in backpack, locker, car

  33. Brown Bag Lunches + Backpack-proof Snacks Nature Valley bars NoGii bars Frito-Lay GF labeled chips Rudi s tortilla wraps Schar baguettes, multigrain bread Follow us on Instagram and Facebook for many more easy recipes and ideas! @CeliacDiseaseFoundation

  34. College 1. Choosing a School Wish list: Dining halls with dedicated GF products and prep areas Allergen labels on all dishes Local restaurants that have GF menus On-campus dining with GF options To Dorm or Not to Dorm? Is the dining hall accommodating? Can you waive the dining hall fee? Is there room for a fridge and microwave in your dorm? Any dorms with kitchenettes?

  35. College 2. Navigating Dining Halls Avoid salad bars with croutons and other crunchies, unlabeled salad dressing, flavored nuts Scrambled eggs: check ingredients and cooking surface Toaster bags, your new best friend Individual condiment packets or squeeze bottles only Avoid shared cereal containers/bulk bins Emergency rations often at convenience stores: o cheese sticks, hardboiled eggs, yogurt, fruit, carrots & celery with ranch, peanut butter, nuts, plain potato chips

  36. College 3. Social Life & The Freshman 15 Eat before going out with friends if you re not sure that there will be GF options Bring a snack bar in your purse/pocket Have the alcohol discussion before it s a problem o No malted beverages or beer. All hard liquors ok o No cider from a beer tap/keg choose bottles and cans o Drinking games are chance for cross-contamination Late-night eating should not be in addition to a full day of meals/snacks spread out your meals Limit liquid calories: smoothies, sodas, flavored coffee drinks, alcohol Stay active IM sports, classes

  37. Easy Dorm Food GF microwavable soup Hard-boiled eggs + cheese sticks Yogurt parfait Chex GF granola Amy s frozen meals Progresso soups Explore Asian noodle soups

  38. CDF Resources

  39. Celiac.org/Webinars Celiac.org/Ask

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