Research Programme on Chronic Conditions and Intergenerational Health in New Zealand
Investigating the impact of chronic conditions on families across the life course, focusing on Maori and Pacific populations. The research program includes sub-projects on intergenerational health in Tokelauan communities and Maori early childhood education outcomes.
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Introduction Life Course Hui 1 December 2022 Barry Milne The National Science Challenges are funded by the Ministry of Business, Innovation and Employment 1
Research Programme Four sub-projects 1. Impact of Chronic Conditions on family across the life course Milne, Underwood, Baxter, Flaherty, Jamieson, Bergler, Teng 2. Intergenerational, integrative & intellectual Pacific properties & pathways for Life (IPforLife) Dewes, Doherty, Fiso, Tokelauan Reference Group (4 Auckland, 3 Wellington) 3. Te Kura Mai i Tawhiti - Documenting a M ori community engaged approach to intergenerational research Ratima, Edwards, Treharne 4. E kore au e ngaro: A whakapapa approach to intergenerational research Kukutai, Newbold 2
1. Impact of chronic conditions on family across the life course Chronic conditions (cancer, cardiovascular disease, diabetes, mental health and obesity) Leading cause of premature death and disability High rates among M ori and Pacific populations Impacts to the individual on functioning and quality of life well established Far less known about the impacts on family Overall disease burden is likely to be under-estimated 3
2. Intergenerational, integrative & intellectual Pacific properties & pathways for Life (IPforLife) Tokelau population has high health needs (#1 most prevalent diabetes population in the world) Population is small (n=8000), well networked, less geographically spread than other NZ Pasifika groups, but understudied (since Tokelau Migrant Study, Prior et al, 1974) IP4Life Aim: Determine the family, household and community strengths that allow people in the Tokelauan community to thrive despite the challenges of living in families with chronic disease. Qualitative investigation in two sites Wellington (53% of Tokelauan population) Auckland (24% of Tokelauan population) 4
3. Te Kura Mai i Tawhiti Co-funded by Endeavour Grant and HRC grant Te K pae Piripono, M ori immersion ECE (30 children), est 1994 ECE programmes can lead to improved lifecourse outcomes, what is largely missing is research on programmes that are effective for M ori. Develop framework for assessing how a kaupapa M ori early life and wh nau programme, Te Kura Mai i Tawhiti, transforms M ori outcomes. Framework finalised 5
4. E kore au e ngaro Co-funded Marsden Grant Document how Ngati Tiipa (Waikato-Tainui) are reconstructing multiple generations of whakapapa with a view to developing their own cloud-based genealogical database. Develop a conceptual framework for a whakapapa-centred approach to intergenerational wellbeing research 6
Todays programme 10.00am Impact of long-term health conditions across the life-course Lisa Underwood, University of Auckland 10.30am Intergenerational, integrative & intellectual Pacific properties & pathways for Life (IP for Life) Ofa Dewes, Tongan Health Society & University of Auckland 11.00am Morning tea 11.30am Ng ti Tiipa E kore au e ngaro Ella Newbold, University of Auckland 12.00pm Impact of chronic conditions on elders Ulrich Bergler, University of Otago Christchurch 12.30pm Te Kura Mai i Tawhiti, A brief update Andrew Sporle, iNZight Analytics 1.00pm Lunch 2.00pm Impact of stroke and TBI and partners economic outcomes Yanshu Huang, University of Queensland 2.30pm Reflection and Discussion on the Life-course research projects 3.30pm Afternoon tea 4.00pm Next steps and wrap up 4.30pm Finish 7
