Lessons Learned and Benefits in Early Childhood Data Systems

Including Early Intervention in
Early Childhood Integrated Data
Systems: Lessons Learned and
Benefits Realized
Stockholm Sweden, June 2016
Missy Coffey Cochenour, M.A.
Kathleen Hebbeler, Ph.D
Abby Schachner, Ph.D
2
12,499,000
children under the
age of 5 are in a
regular child care
arrangement
771,049 
children
enrolled in Head
Start each year
Over 
150,000
children 
are
enrolled in Early
Head Start
3
Understanding Early Intervention (EI) Early
Childhood Special Education (ECSE) in the U.S.
 
4
What are the consequences of separate
programs with separate data systems?
We do not know:
How many children with disabilities are being served in
multiple programs
How many children are served across all programs
Important questions about early childhood
education 
across
 programs cannot be answered
without integrated data
E.g., Which children with disabilities attend high-quality
early childhood programs and services?
5
What is an Integrated EC Data System?
Collects, integrates, maintains,
stores, and reports information
from 
multiple 
early childhood
programs 
Includes data on the individual
child, the family, the classroom,
the program/providers, and
other services
Reference: https://slds.grads360.org/#communities/pdc/documents/4441
6
Status of State Data Systems for EI and
ECSE
Because EI (0-3) and (3-5) are separate programs,
they also have a need to link data
Online needs assessment developed by DaSy
workgroup
Completed by state early intervention Early
Childhood Special Education coordinators
Asked about status of data systems
7
Status of State Data Systems for EI and
ECSE
Data on children, programs, workforce are contained
in different data systems
Often, not even
 
all data on children reside in the same
data system
Only about one-third of states have linked data
across
 EI and ECSE
Linkages with K12 education data are more common
for ECSE than for EI
8
Status of State Data Systems for EI and
ECSE: Linking across the system
For EI, few states have linkages with other EC data,
and for ECSE, almost half have linkages with state
Pre-K
Linkages with health data are more common for EI
than for ECSE
Only few states have linked EI or ECSE data to social
services data
Abbreviations: SCHIP = State Children’s Health Insurance Program;
WIC/SNAP = Women, Infants, and Children/Supplemental Nutrition Assistance Program.
9
EI and ECSE link with multiple programs
Note: The thickness of the lines represents the relative proportion of states with
linkages.
10
Multiple Benefits of Having Integrated
Data
Data systems serve multiple purposes:
Accountability
Program operations
Program improvement
Knowledge development
11
Benefit:  Program Operations
 Children transition to ECSE at 36 months
How many children will be turning 3 in next 6 months?
How many of these children have had a transition plan
developed?
How many of these children have had an evaluation
completed?
How many of these children are eligible for 3-5 services?
Benefits:
Improved management of transitions
Better transitions for children and families
12
Benefit:  Program Improvement
Children are served in multiple programs meaning
multiple influences on child outcomes
What are the outcomes for children with various
combinations of services and programs (e.g., child care
and EI)?
Do some combinations produce poorer or stronger
outcomes than others?
What needs to be done to improve less effective
programs/services so that all children experience good
outcomes?
13
Benefit:  Knowledge Development
Linking 0-3 data to 3-5 data to K-12 data provides
answers to critical questions such as:
How many children who receive 0-3 services receive
special education services between 3-5, in kindergarten, in
third grade, in eighth grade, etc.?
How many children who received EI or ECSE were reading
on grade level in Grade 3?  What are their characteristics?
What are the characteristics of the services they received
as young children?
14
General Lessons Learned
Privacy and confidentiality issues are challenging
An ECIDS does not replace effective program-level data
systems – in fact, it requires one
There has been a cultural shift from data for data’s
sake to one of using data for:
Accountability
Program operations
Program improvement
Knowledge development
15
Integrating EI/ECSE with Other Programs
Multiple layers of decisions need to be made in developing an
ECIDS (e.g., data governance, structure of data system)
Development of an ECIDS requires ongoing stakeholder
engagement from programs that are potential data contributors.
Some programs may not be ready to share data in the early
phases but might be ready later
Minimal research on the state-level data driven decision making
for states to use in building an ECIDS (e.g. collaboration, data
literacy skills, data anxiety and self-efficacy)
16
Resources
ECIDS Toolkit
http://dasycenter.org/2014-early-childhood-integrated-data-systems-ecids-
toolkit-2/
What is an ECIDS
https://nces.ed.gov/programs/slds/pdf/whatisanecids.pdf
DaSy Framework
http://dasycenter.org/resources/dasy-framework/
DaSy Needs Assessment Report
http://dasycenter.org/idea-part-c-and-part-b-619-state-data-systems-current-
status-and-future-priorities/
17
For More Information
Visit the DaSy website at:
http://dasycenter.org/
Visit the State Longitudinal Data System State
Support Team website at:
https://nces.ed.gov/programs/slds/techassistance.asp
Email us:
Missy Coffey Cochenour 
missy.cochenour@aemcorp.com
 
Kathleen Hebbeler 
kathleen.hebbeler@sri.com
Abby Schachner 
abby.schachner@sri.com
18
References
1.
Child care services statistics retrieved from
http://www.census.gov/content/dam/Census/library/publications/2013/demo/p70-
135.pdf
  
2.
Head Start Services statistics retrieved from 
http://eclkc.ohs.acf.hhs.gov/hslc/data/pir
3.
Early intervention and early childhood special education statistics retrieved from
http://www2.ed.gov/about/reports/annual/osep/2015/parts-b-c/37th-arc-for-idea.pdf
 
4.
Cochenour, M., Chatis, C., Irvine, S., Sellers, J., and Duarte, S. (2014). What is an Early
Childhood Integrated Data System? U.S. Department of Education. Washington, DC:
National Center for Education Statistics. Retrieved
from 
https://slds.grads360.org/#communities/pdc/documents/4441
5.
Derrington, T., Spiker, D., Hebbeler, K., & Diefendorf, M. (2013). 
IDEA Part C and Part B 619
state data systems: Current status and future priorities
. Menlo Park, CA: SRI International.
Retrieved from 
https://slds.grads360.org/#communities/pdc/documents/4441
19
The contents of this presentation were developed under a grant from the
U.S. Department of Education, #H373Z120002. However, those contents do
not necessarily represent the policy of the U.S. Department of Education,
and you should not assume endorsement by the Federal Government.
Project Officers, Meredith Miceli and Richelle Davis.
 
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This presentation explores the importance of integrated data systems in early childhood education, emphasizing the need for linking data across different programs. It highlights the challenges of separate data systems and the benefits of an Integrated EC Data System. The status of state data systems for Early Intervention and Early Childhood Special Education is also discussed, pointing out the need for improved data linkages.

  • Early Childhood
  • Data Systems
  • Integrated Data
  • Early Intervention
  • Lessons Learned

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  1. The Center for IDEA Early Childhood Data Systems Including Early Intervention in Early Childhood Integrated Data Systems: Lessons Learned and Benefits Realized Stockholm Sweden, June 2016 Missy Coffey Cochenour, M.A. Kathleen Hebbeler, Ph.D Abby Schachner, Ph.D

  2. 12,499,000 children under the age of 5 are in a regular child care arrangement 771,049 children enrolled in Head Start each year Over 150,000 children are enrolled in Early Head Start 2 2 http://www.buildinitiative.org/Portals/0/Uploads/Documents/SystemsDiagram.pdf

  3. Understanding Early Intervention (EI) Early Childhood Special Education (ECSE) in the U.S. 3

  4. What are the consequences of separate programs with separate data systems? We do not know: How many children with disabilities are being served in multiple programs How many children are served across all programs Important questions about early childhood education across programs cannot be answered without integrated data E.g., Which children with disabilities attend high-quality early childhood programs and services? 4

  5. What is an Integrated EC Data System? Collects, integrates, maintains, stores, and reports information from multiple early childhood programs Includes data on the individual child, the family, the classroom, the program/providers, and other services Reference: https://slds.grads360.org/#communities/pdc/documents/4441 5

  6. Status of State Data Systems for EI and ECSE Because EI (0-3) and (3-5) are separate programs, they also have a need to link data Online needs assessment developed by DaSy workgroup Completed by state early intervention Early Childhood Special Education coordinators Asked about status of data systems 6

  7. Status of State Data Systems for EI and ECSE Data on children, programs, workforce are contained in different data systems Often, not even all data on children reside in the same data system Only about one-third of states have linked data across EI and ECSE Linkages with K12 education data are more common for ECSE than for EI 7

  8. Status of State Data Systems for EI and ECSE: Linking across the system For EI, few states have linkages with other EC data, and for ECSE, almost half have linkages with state Pre-K Linkages with health data are more common for EI than for ECSE Only few states have linked EI or ECSE data to social services data Abbreviations: SCHIP = State Children s Health Insurance Program; WIC/SNAP = Women, Infants, and Children/Supplemental Nutrition Assistance Program. 8

  9. EI and ECSE link with multiple programs Note: The thickness of the lines represents the relative proportion of states with linkages. 9

  10. Multiple Benefits of Having Integrated Data Data systems serve multiple purposes: Accountability Program operations Program improvement Knowledge development 10

  11. Benefit: Program Operations Children transition to ECSE at 36 months How many children will be turning 3 in next 6 months? How many of these children have had a transition plan developed? How many of these children have had an evaluation completed? How many of these children are eligible for 3-5 services? Benefits: Improved management of transitions Better transitions for children and families 11

  12. Benefit: Program Improvement Children are served in multiple programs meaning multiple influences on child outcomes What are the outcomes for children with various combinations of services and programs (e.g., child care and EI)? Do some combinations produce poorer or stronger outcomes than others? What needs to be done to improve less effective programs/services so that all children experience good outcomes? 12

  13. Benefit: Knowledge Development Linking 0-3 data to 3-5 data to K-12 data provides answers to critical questions such as: How many children who receive 0-3 services receive special education services between 3-5, in kindergarten, in third grade, in eighth grade, etc.? How many children who received EI or ECSE were reading on grade level in Grade 3? What are their characteristics? What are the characteristics of the services they received as young children? 13

  14. General Lessons Learned Privacy and confidentiality issues are challenging An ECIDS does not replace effective program-level data systems in fact, it requires one There has been a cultural shift from data for data s sake to one of using data for: Accountability Program operations Program improvement Knowledge development 14

  15. Integrating EI/ECSE with Other Programs Multiple layers of decisions need to be made in developing an ECIDS (e.g., data governance, structure of data system) Development of an ECIDS requires ongoing stakeholder engagement from programs that are potential data contributors. Some programs may not be ready to share data in the early phases but might be ready later Minimal research on the state-level data driven decision making for states to use in building an ECIDS (e.g. collaboration, data literacy skills, data anxiety and self-efficacy) 15

  16. Resources ECIDS Toolkit http://dasycenter.org/2014-early-childhood-integrated-data-systems-ecids- toolkit-2/ What is an ECIDS https://nces.ed.gov/programs/slds/pdf/whatisanecids.pdf DaSy Framework http://dasycenter.org/resources/dasy-framework/ DaSy Needs Assessment Report http://dasycenter.org/idea-part-c-and-part-b-619-state-data-systems-current- status-and-future-priorities/ 16

  17. For More Information Visit the DaSy website at: http://dasycenter.org/ Visit the State Longitudinal Data System State Support Team website at: https://nces.ed.gov/programs/slds/techassistance.asp Email us: Missy Coffey Cochenour missy.cochenour@aemcorp.com Kathleen Hebbeler kathleen.hebbeler@sri.com Abby Schachner abby.schachner@sri.com 17

  18. References 1. Child care services statistics retrieved from http://www.census.gov/content/dam/Census/library/publications/2013/demo/p70- 135.pdf Head Start Services statistics retrieved from http://eclkc.ohs.acf.hhs.gov/hslc/data/pir Early intervention and early childhood special education statistics retrieved from http://www2.ed.gov/about/reports/annual/osep/2015/parts-b-c/37th-arc-for-idea.pdf Cochenour, M., Chatis, C., Irvine, S., Sellers, J., and Duarte, S. (2014). What is an Early Childhood Integrated Data System? U.S. Department of Education. Washington, DC: National Center for Education Statistics. Retrieved from https://slds.grads360.org/#communities/pdc/documents/4441 Derrington, T., Spiker, D., Hebbeler, K., & Diefendorf, M. (2013). IDEA Part C and Part B 619 state data systems: Current status and future priorities. Menlo Park, CA: SRI International. Retrieved from https://slds.grads360.org/#communities/pdc/documents/4441 2. 3. 4. 5. 18

  19. The contents of this presentation were developed under a grant from the U.S. Department of Education, #H373Z120002. However, those contents do not necessarily represent the policy of the U.S. Department of Education, and you should not assume endorsement by the Federal Government. Project Officers, Meredith Miceli and Richelle Davis. 19

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