Enhancing Plain Language Summaries for Consumer Involvement
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Catherine McIlwain (cmcilwain@cochrane.org)
20
th
Annual Cochrane Colloquium
Auckland, 3
rd
October 2012
Improving plain language summaries
Supporting consumer involvement
Getting the word out
Random sample of 243 plain language
summaries (PLS)
24%
of the plain language summaries and
abstracts didn’t match
*German Cochrane Centre survey– 2004
Use of Statistics
Explaining Bias
Quality of Evidence
Imprecision
*Excerpt from Glenton and Santesso presentation to the Co-
ordinating Editors Board in 2010 October.
Sentence length
Reading level
Headers and paragraphs
Use of complex terms
Consumer Feedback Essential
Consumer developed
ERC refined
Adherence to MECIR and PLS standards
Pilot phase in progress
Including an explanatory guide to
accompany the Consumer Referee Checklist
s
ummarie
s.cochrane.org
E
uropean
C
ommunication on
R
esearch
A
wareness
N
eeds
“Communicating the benefits of European research to the general public
”
To develop tools to:
communicate key messages
to citizens, patients, patients
organizations, healthcare professionals, researchers, policymakers and
society about independent, multinational clinical research
First key message:
The
importance of public understanding
of the need for, and basic
principles of clinical trials, fostering active involvement of citizens and
patients in trials and of their representatives in trial design
Improving plain language summaries is crucial for supporting consumer involvement in healthcare decision-making. This presentation highlights the importance of clear communication, showcasing the impact of enhanced summaries and addressing challenges in achieving consistency and quality. Key areas of focus include sentence length, reading levels, complex terms, and feedback mechanisms to refine standards. The goal is to empower consumers with accessible information for informed choices.
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Presentation Transcript
Catherine McIlwain (cmcilwain@cochrane.org) 20thAnnual Cochrane Colloquium Auckland, 3rdOctober 2012
Improving plain language summaries Supporting consumer involvement Getting the word out
Random sample of 243 plain language summaries (PLS) 24% abstracts didn t match 24% of the plain language summaries and *German Cochrane Centre survey 2004
Use of Statistics Explaining Bias Quality of Evidence Imprecision
*Excerpt from Glenton and Santesso presentation to the Co- ordinating Editors Board in 2010 October.
Sentence length Reading level Headers and paragraphs Use of complex terms
Consumer Feedback Essential Consumer Feedback Essential Consumer developed ERC refined Adherence to MECIR and PLS standards Pilot phase in progress
Including an explanatory guide to accompany the Consumer Referee Checklist
s summarie ummaries.cochrane.org s.cochrane.org
European Commission ECRAN Project Communicating the benefits of European research to the general public
E European uropean C Communication on ommunication on R Research A Awareness wareness N Needs eeds Communicating the benefits of European research to the general public esearch To develop tools to: communicate key messages to citizens, patients, patients organizations, healthcare professionals, researchers, policymakers and society about independent, multinational clinical research First key message: The importance of public understanding of the need for, and basic principles of clinical trials, fostering active involvement of citizens and patients in trials and of their representatives in trial design
