Improving Cancer Care Across European Countries with Cross-Border Healthcare Directive Evaluation
The content discusses the mission of ERN PaedCan to reduce cancer cases by providing advice, access to modern diagnostics and treatments, and expertise through Virtual Tumor Boards. It also highlights the European Governance structure, Key Performance Indicators, a Evaluation Study on the Cross-Bord
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Rare Condition Patient Journey Overview
This patient journey focuses on the stages from pre-diagnosis to transition, highlighting the clinical presentations, necessary actions, patient needs, and ideal outcomes at each stage. Green marketing practices, going beyond traditional methods, co-funded by EU and supported by your ERN logo. Best
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ePAG Steering Committee Governance Update Summary
The ePAG Steering Committee is working on governance aspects and templates for ePAGs, focusing on patient engagement and transparency. The committee aims to establish clear requirements for patient organizations, formalize relationships between ERNs and patient organizations, and integrate rules for
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