Rare Condition Patient Journey Overview

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This patient journey focuses on the stages from pre-diagnosis to transition, highlighting the clinical presentations, necessary actions, patient needs, and ideal outcomes at each stage. Green marketing practices, going beyond traditional methods, co-funded by EU and supported by your ERN logo. Best practices are also shared for enhanced patient care.


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  1. ERN Patient Journey Name of rare condition Text Date Your ERN logo here Co-funded by the EU

  2. Overview of Patient Journey 05 04 01 02 03 Transition Intervention Pre-Diagnosis 1st Symptom Diagnosis Green marketing is a Green marketing is a Green marketing is a Green marketing is a Green marketing is a practice whereby practice whereby practice whereby practice whereby practice whereby companies seek to go companies seek to go companies seek to go companies seek to go companies seek to go above and beyond above and beyond above and beyond above and beyond above and beyond traditional traditional traditional traditional traditional Your ERN logo here Co-funded by the EU

  3. Pre-Diagnosis Clinical Presentation add Necessary Actions Add Patient Needs Add Ideal Outcome & Support Add Your ERN logo here Co-funded by the EU

  4. First Symptom Clinical Presentation add Necessary Actions Add Patient Needs Add Ideal Outcome & Support Add Your ERN logo here Co-funded by the EU

  5. Diagnosis Clinical Presentation add Necessary Actions Add Patient Needs Add Ideal Outcome & Support Add Your ERN logo here Co-funded by the EU

  6. Intervention Clinical Presentation add Necessary Actions Add Patient Needs Add Ideal Outcome & Support Add Your ERN logo here Co-funded by the EU

  7. Transition Clinical Presentation add Necessary Actions Add Patient Needs Add Ideal Outcome & Support Add Your ERN logo here Co-funded by the EU

  8. Other Stages Clinical Presentation add Necessary Actions Add Patient Needs Add Ideal Outcome & Support Add Your ERN logo here Co-funded by the EU

  9. Best Practice Best Practice #1 add Best Practice #2 Add Best Practice #3 add Your ERN logo here Co-funded by the EU

  10. Further Information Further Information Contact: xxx Email: xxx Your ERN logo here Co-funded by the EU

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