Top Tips for Effective Disability Support
TOP 5
for a person with an
intellectual disability
A Guide for Disability Support Staff and Family Carers
TOP 5 is…
•
designed to
assist
the hospital staff
better
understand
the individual needs of the person
•
developed by people who
know the person well
and
include:
•
any
risks
eg choking, pica
•
interests, likes
,
dislikes, fears/ phobias, rituals/routines
•
things that might
trigger
the person to
become upset
whilst in the hospital setting
W
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r
e
t
h
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b
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f
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T
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5
?
•
Better understanding
of the person with disability
•
Important information to
keep the person safe
•
Strategies
to support the person if they become
distressed
•
Make it
easier
for hospital staff to do their job
•
Improved hospital journey for person with disability
H
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d
e
v
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p
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O
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5
Consider the
five
most important tips or strategies you
think disability/health staff need to know to:
•
Identify risks to the persons safety i.e choking
•
Keep the person you care for reassured and settled
•
Gain co-operation in personal care activities
•
Encourage communication
•
Acknowledge and support their interests, and sense of self
E
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Consider
risks
…
Examples…
Mark will climb over bedrails and slide out of the end of the bed. He
needs supervision 24/7.
.
Mother
Tina will eat anything including non-edibles. Take care to
keep medical supplies etc. out of her reach. All meals must
be supervised or she will eat the containers and cutlery.
Support Worker
Mohammed doesn’t like needles and will lash out. He needs you to
make it a game, distract him, 2 people to hold his hands. He needs a
reward afterwards- give him a clap.
Mother
What can help to
minimise distress?
Examples…
If you show Hanna the procedure on yourself first, she will then let you
do it for her, eg put the Blood Pressure cuff on your arm, then hers.
Support worker
Matthew must have a magazine that features girls such as a fashion
magazine. He will tuck it under his arm and sit patiently.
Sister
Understanding
the person?
Examples…
Jonathon has a unique sign for YES: He taps his head with a closed fist.
Mother
Brett clicks his tongue when he is thirsty, and he squeals when he
smells food.
Father
Sophie has a big personality and is fun loving. She likes lots of
attention and positive verbal praise. Give her a 5 min warning and
rephrase rather than saying ‘No’.
Father
Examples…
Tristan is non-verbal, and uses about 20 key word signs and gestures.
He will give you a ‘thumbs up’ when he is happy.
Father
Saanvi uses Nappies, and is toilet timed. She will tap her groin if she needs to
go to the toilet. You need to monitor her bowel movements as she can smear
faeces.
Mother
N
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X
T
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5
f
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Keep it in the A2D Together Folder
•
Front Cover – Contacts/Photo
•
Medication Chart – Blister pack/liquids/inhalers
•
TOP 5 Tips for support
•
Hospital Support Plan
•
Other management plans to support the person
in hospital
When admitted to hospital…
TOP 5
is:
•
A copy is given to hospital staff
•
TOP 5
is kept with the person at all times in their A2D
folder
TOP 5
provides important information to hospital staff who will be
interacting with the person during their admission to hospital
What happens in an emergency?
•
Give the
A2D Together Folder
to the
Paramedic
•
Explain the
TOP 5
•
VITAL
information for
ALL
health staff
TOP 5
is especially important if the
person is
unaccompanied.
Want to know more?
•
http://www.cclhd.health.nsw.gov.au/patientsand
visitors/CarerSupport/top5
•
http://www.cec.health.nsw.gov.au/programs/part
nering-with-patients/top5
This guide provides essential tips for disability support staff and carers to understand and address the unique needs of individuals with intellectual disabilities. It covers strategies to identify risks, offer reassurance, promote cooperation in personal care, encourage communication, and support individual interests, ultimately enhancing the hospital journey for those with disabilities.
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Presentation Transcript
TOP 5 for a person with an intellectual disability A Guide for Disability Support Staff and Family Carers
TOP 5 is designed to assist the hospital staff better understand the individual needs of the person developed by people who know the person well and include: any risks eg choking, pica interests, likes, dislikes, fears/ phobias, rituals/routines things that might trigger the person to become upset whilst in the hospital setting
What are the benefits of TOP 5 TOP 5? Better understanding of the person with disability Important information to keep the person safe Strategies to support the person if they become distressed Make it easier for hospital staff to do their job Improved hospital journey for person with disability
How to develop a TOP 5 TOP 5 Consider the five most important tips or strategies you think disability/health staff need to know to: Identify risks to the persons safety i.e choking Keep the person you care for reassured and settled Gain co-operation in personal care activities Encourage communication Acknowledge and support their interests, and sense of self
Each TIP should Each TIP should include: include: 1. What 1. What action 2. 2. W Why hy 3. The 3. The expected expected outcome action the staff need the staff need do, do, or or not not do do outcome this will achieve this will achieve
Consider risks Ways to minimise the risks? Additional information? What are they? Choking Absconding Falling Aggression etc Supervision with food Meal modification Placement of food /drink Provide bed near nurses station & supervise closely Use walker when mobilising Stand a metre away when speaking to person etc Mealtime Management Plan Behaviour Management Plan Most recent specialist review etc
Examples Mark will climb over bedrails and slide out of the end of the bed. He needs supervision 24/7.. Mother Mohammed doesn t like needles and will lash out. He needs you to make it a game, distract him, 2 people to hold his hands. He needs a reward afterwards- give him a clap. Mother Tina will eat anything including non-edibles. Take care to keep medical supplies etc. out of her reach. All meals must be supervised or she will eat the containers and cutlery. Support Worker
What can help to minimise distress? Are there set routines developed that keep the person reassured? Are there things or tasks that help settle the person? What things may cause distress? at bedtime with meals with personal care unfamiliar people noise colours words clothing visitors fear of needles doctors crowds etc a quiet place must haves e.g soft toy, buzzer, remote cup of tea/coffee turn the light of sit in a chair listen to music Preferred activity talk to someone on the phone etc
Examples If you show Hanna the procedure on yourself first, she will then let you do it for her, eg put the Blood Pressure cuff on your arm, then hers. Support worker Matthew must have a magazine that features girls such as a fashion magazine. He will tuck it under his arm and sit patiently. Sister
Understanding the person? What do you need to know about the person? What do you need to know about the person? What will the outcome be? Use of key word signs Gestures & non-verbal cues How the person expresses pain, discomfort, fear Behaviours that may be used to communicate a need Use of communication aids Likes and dislikes Personality To build rapport with the person Improve communication and understanding Improve the persons experience
Examples Jonathon has a unique sign for YES: He taps his head with a closed fist. Mother Brett clicks his tongue when he is thirsty, and he squeals when he smells food. Father Sophie has a big personality and is fun loving. She likes lots of attention and positive verbal praise. Give her a 5 min warning and rephrase rather than saying No . Father
Examples Tristan is non-verbal, and uses about 20 key word signs and gestures. He will give you a thumbs up when he is happy. Father Saanvi uses Nappies, and is toilet timed. She will tap her groin if she needs to go to the toilet. You need to monitor her bowel movements as she can smear faeces. Mother
NEXT NEXT Write them on the TOP 5 form
Keep it in the A2D Together Folder Front Cover Contacts/Photo Medication Chart Blister pack/liquids/inhalers TOP 5 Tips for support Hospital Support Plan Other management plans to support the person in hospital
When admitted to hospital TOP 5 is: A copy is given to hospital staff TOP 5 is kept with the person at all times in their A2D folder TOP 5 provides important information to hospital staff who will be interacting with the person during their admission to hospital
What happens in an emergency? Give the A2D Together Folder to the Paramedic Explain the TOP 5 VITAL information for ALL health staff TOP 5 is especially important if the person is unaccompanied.
Want to know more? http://www.cclhd.health.nsw.gov.au/patientsand visitors/CarerSupport/top5 http://www.cec.health.nsw.gov.au/programs/part nering-with-patients/top5
