Patient Safety Issues in Merging Client IDs with FHIR Specifications

 
Client ID merge on FHIR
 
Patient-safety issues related to merging client IDs
using existing FHIR specifications.
 
Overview
 
A “PIXm” work item is active, during the 2018-2019 cycle, in
IHE’s IT Infrastructure (ITI) technical committee; this work
item is focused on profiling a 
FHIR equivalent to the ITI-8
Patient Identity Feed transaction
ITI-8 includes a description of system behaviours following a
client ID “merge” operation
There are challenges in operationalizing client ID merge
using FHIR; these challenges present potential patient
safety risks
 
2
 
The “problem” scenario…
 
Workflow
:
1.
Client Registry (CR) record ID-1 created for John
2.
Shared Health Record (SHR) transaction TX-A recorded for
John under ID-1
3.
CR record ID-2 created for John, 
in error
4.
SHR transaction TX-B recorded for John under ID-2
Result
: there are, in error, multiple enterprise IDs for
John in the CR and there is health information about
John in the SHR under each separate ID
 
3
 
Problematic system behaviour…
 
A query against the CR using either ID-1 
or
 ID-2 will, in error,
appear
 to correctly resolve to John’s single, definitive, golden
demographic record
A demographic query against the CR will return, in error, multiple
records for John… with no way to establish which one is the
definitive golden record
An update to the CR using either ID-1 
or
 ID-2 will, in error, 
appear
to have updated John’s golden record
A query against the SHR using either ID-1 
or
 ID-2 will, in error –
and 
unsafely
, return only a partial subset of John’s health
information
 
4
 
Behaviour of the 
fixed
 problem…
 
It is detected that CR ID-1 and ID-2 both refer to John
and the two IDs are “merged”
Following the “merge” transaction:
There is 1-and-only-1 enterprise ID for John in the CR; a query
on this ID will return John’s single 
golden 
demographic record
A query against the CR using ID-1 or ID-2, or any demographic
query, will resolve to John’s golden record & enterprise ID
A query against the SHR using John’s enterprise ID will return
all of John’s health information (TX-A 
and
 TX-B)
 
5
 
Some questions…
 
What should be the mandatory behaviour of a FHIR patient “merge”
operation in OpenHIE? (
https://hl7.org/fhir/2018May/patient.html#merge
)
What architectural role should the CR play in operationalizing a patient ID
“merge”? (
https://hl7.org/fhir/2018May/patient.html#match
)
What are some of the current approaches to addressing patient ID
“merging”; can they inform our approach in OpenHIE?
(
https://mitre.github.io/ptmerge-interface/
)
What architectural role should the OpenHIE Interoperability Layer (IOL)
play in operationalizing a patient ID “merge”? Can the IOL be employed to
orchestrate the long-running FHIR transaction(s) needed to 
enforce
patient-safe behaviours 
of an HIE?
 
6
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Focusing on the potential patient safety risks associated with merging client IDs using FHIR specifications. The discussion highlights challenges, system behaviors, and the impacts on both demographic and health information records. It also presents a scenario illustrating problematic behaviors and the ideal behavior post-merge to ensure patient safety.

  • Patient Safety
  • FHIR Specifications
  • Client IDs
  • Health Records
  • System Behaviors

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  1. Client ID merge on FHIR Patient-safety issues related to merging client IDs using existing FHIR specifications.

  2. Overview A PIXm work item is active, during the 2018-2019 cycle, in IHE s IT Infrastructure (ITI) technical committee; this work item is focused on profiling a FHIR equivalent to the ITI-8 Patient Identity Feed transaction ITI-8 includes a description of system behaviours following a client ID merge operation There are challenges in operationalizing client ID merge using FHIR; these challenges present potential patient safety risks 2

  3. The problem scenario Workflow: 1. 2. Client Registry (CR) record ID-1 created for John Shared Health Record (SHR) transaction TX-A recorded for John under ID-1 CR record ID-2 created for John, in error 4. SHR transaction TX-B recorded for John under ID-2 Result: there are, in error, multiple enterprise IDs for John in the CR and there is health information about John in the SHR under each separate ID 3. 3

  4. Problematic system behaviour A query against the CR using either ID-1 or ID-2 will, in error, appearto correctly resolve to John s single, definitive, golden demographic record A demographic query against the CR will return, in error, multiple records for John with no way to establish which one is the definitive golden record An update to the CR using either ID-1 or ID-2 will, in error, appear to have updated John s golden record A query against the SHR using either ID-1 or ID-2 will, in error and unsafely, return only a partial subset of John s health information 4

  5. Behaviour of the fixedproblem It is detected that CR ID-1 and ID-2 both refer to John and the two IDs are merged Following the merge transaction: There is 1-and-only-1 enterprise ID for John in the CR; a query on this ID will return John s single golden demographic record A query against the CR using ID-1 or ID-2, or any demographic query, will resolve to John s golden record & enterprise ID A query against the SHR using John s enterprise ID will return all of John s health information (TX-A and TX-B) 5

  6. Some questions What should be the mandatory behaviour of a FHIR patient merge operation in OpenHIE? (https://hl7.org/fhir/2018May/patient.html#merge) What architectural role should the CR play in operationalizing a patient ID merge ? (https://hl7.org/fhir/2018May/patient.html#match) What are some of the current approaches to addressing patient ID merging ; can they inform our approach in OpenHIE? (https://mitre.github.io/ptmerge-interface/) What architectural role should the OpenHIE Interoperability Layer (IOL) play in operationalizing a patient ID merge ? Can the IOL be employed to orchestrate the long-running FHIR transaction(s) needed to enforce patient-safe behaviours of an HIE? 6

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