HCBS Final Rule for Medicaid-Funded Services
Getting to Know the HCBS Final Rule
Jamie Ray-Leonetti
Associate Director of Policy
Pennsylvania’s University Center for Excellence
in Developmental Disabilities
Education, Research and Service
VISION
A society where all people are valued and respected,
and where all people have the knowledge, opportunity
and power to improve their lives and the lives of
others.
MISSION
The Institute on Disabilities at Temple University learns
from and works with people with disabilities and their
families in diverse communities across Pennsylvania to
create and share knowledge, change systems, and
promote self-determined lives so that disability is
recognized as a natural part of the human experience.
What is the “HCBS Final Rule”?
•
Announced by Centers for Medicare and
Medicaid Services (CMS) in January 2014
•
Impact residential and day service settings
funded through Medicaid where Home and
Community Based Services (HCBS) are
provided
•
Intended to promote choice of daily activities
and person-centered planning
All HCBS Settings Must -
•
Be integrated in and facilitate access to the
greater community;
•
Allow individuals optimized autonomy and
independence in making life choices;
•
Be chosen by the individual from among
residential and day options, including non-
disability specific settings;
All HCBS Settings Must (cont.)-
•
Ensure right to privacy, dignity and respect
(including no coercion or restraint);
•
Provide opportunity to seek competitive
employment;
•
Provide for choice of roommate in a
residential setting; and
•
Encourage choice of services and choice of
who provides them.
Additional Requirements – Residential
Settings Provider Owned-
•
Have a written lease;
•
Privacy in the unit including an entrance the
individual can lock (key staff may have a key
based on individual’s need);
•
Choice of roommates;
•
Ability to decorate the unit just as any other
leaseholder;
•
Control of schedule and daily activities;
Residential – Provider Owned (Cont.)
•
Access to food at any time;
•
Visitors of their choosing at any time; and
•
A unit that is physically accessible to the
individual.
Timeline for Implementation -
•
Rule introduced January 2014
•
Rule took effect March 2014
•
Rule compliance deadline extended to March
17, 2022
Where are we now?
•
Statewide transition plans
•
Pennsylvania currently has conditional
approval
•
There will be another period of public
comment before final approval is granted in
PA
•
The public comment period is IMPORTANT
Why is the Comment Period
Important?
•
This is a chance for self-advocates to have
their voices heard;
•
This will likely be the last opportunity for
public comment before the plan becomes
final; and
•
Public comments can help to protect the role
of person-centered planning and personal
choice.
Benefits of the Rule -
•
Focuses on activities and opportunity for
community engagement – not focused on a
place, or four walls of a “facility”.
•
Emphasizes the central role of the individual
in building their “everyday life”
•
Recognizes that no two “everyday lives” look
alike
Benefits (cont.) -
•
Requires person-centered planning
•
Never “one size fits all”
Potential Challenges of the Rule -
•
Making sure families and people with
disabilities are informed
•
Ensuring that current day and residential HCBS
programs comply with the Rule
•
Changing the way providers due business
•
Changing the way individuals think about their
day
QUESTIONS??
Institute on Disabilities at Temple University
1755 N 13
th
Street
Student Center, Room 411S
Philadelphia, PA 19122
Tel: 215-204-1356 Fax: 215-204-6336
Email: IOD@temple.edu
Web: www.disabilities.temple.edu
MY contact information:
Tel: (215) 204-9543
Email: jamie.ray-leonetti@temple.edu
The HCBS Final Rule, announced by CMS in 2014, affects Medicaid-funded residential and day services. It aims to enhance choice, person-centered planning, and integration into the community for individuals receiving HCBS. Key requirements include autonomy, privacy, competitive employment opportunities, and the right to choose services and service providers. The rule emphasizes dignity, respect, and independence for individuals with disabilities or special needs in both residential and day settings.
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Presentation Transcript
Getting to Know the HCBS Final Rule Jamie Ray-Leonetti Associate Director of Policy
Pennsylvanias University Center for Excellence in Developmental Disabilities Education, Research and Service
VISION A society where all people are valued and respected, and where all people have the knowledge, opportunity and power to improve their lives and the lives of others. MISSION The Institute on Disabilities at Temple University learns from and works with people with disabilities and their families in diverse communities across Pennsylvania to create and share knowledge, change systems, and promote self-determined lives so that disability is recognized as a natural part of the human experience.
What is the HCBS Final Rule? Announced by Centers for Medicare and Medicaid Services (CMS) in January 2014 Impact residential and day service settings funded through Medicaid where Home and Community Based Services (HCBS) are provided Intended to promote choice of daily activities and person-centered planning
All HCBS Settings Must - Be integrated in and facilitate access to the greater community; Allow individuals optimized autonomy and independence in making life choices; Be chosen by the individual from among residential and day options, including non- disability specific settings;
All HCBS Settings Must (cont.)- Ensure right to privacy, dignity and respect (including no coercion or restraint); Provide opportunity to seek competitive employment; Provide for choice of roommate in a residential setting; and Encourage choice of services and choice of who provides them.
Additional Requirements Residential Settings Provider Owned- Have a written lease; Privacy in the unit including an entrance the individual can lock (key staff may have a key based on individual s need); Choice of roommates; Ability to decorate the unit just as any other leaseholder; Control of schedule and daily activities;
Residential Provider Owned (Cont.) Access to food at any time; Visitors of their choosing at any time; and A unit that is physically accessible to the individual.
Timeline for Implementation - Rule introduced January 2014 Rule took effect March 2014 Rule compliance deadline extended to March 17, 2022
Where are we now? Statewide transition plans Pennsylvania currently has conditional approval There will be another period of public comment before final approval is granted in PA The public comment period is IMPORTANT
Why is the Comment Period Important? This is a chance for self-advocates to have their voices heard; This will likely be the last opportunity for public comment before the plan becomes final; and Public comments can help to protect the role of person-centered planning and personal choice.
Benefits of the Rule - Focuses on activities and opportunity for community engagement not focused on a place, or four walls of a facility . Emphasizes the central role of the individual in building their everyday life Recognizes that no two everyday lives look alike
Benefits (cont.) - Requires person-centered planning Never one size fits all
Potential Challenges of the Rule - Making sure families and people with disabilities are informed Ensuring that current day and residential HCBS programs comply with the Rule Changing the way providers due business Changing the way individuals think about their day
Institute on Disabilities at Temple University 1755 N 13th Street Student Center, Room 411S Philadelphia, PA 19122 Tel: 215-204-1356 Fax: 215-204-6336 Email: IOD@temple.edu Web: www.disabilities.temple.edu MY contact information: Tel: (215) 204-9543 Email: jamie.ray-leonetti@temple.edu
