Enhancing Patient Involvement in Clinical Nutrition Guidelines
This collection of resources highlights the importance of involving patients in the development of clinical nutrition guidelines. It focuses on creating patient-friendly summaries of scientific information to empower patients in making informed food and diet choices. The documents provide insights into existing guideline development processes, recommendations for improving patient involvement, and collaboration initiatives to ensure strong patient engagement in reviewing new guidelines.
- Patient involvement
- Clinical nutrition guidelines
- Empowerment
- Patient-friendly summaries
- Collaboration
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Presentation Transcript
PATIENT INVOLVEMENT IN CLINICAL NUTRITION GUIDELINES AND LAY SUMMARIES 15 July 2019, Brussels @eupatientsforum
EPF and Nutrition EPF activities to date
Clinical Nutrition Guidelines and Summaries for Patients - Nov 2018 WHAT is the paper about? Underlines the importance of information to patients on food and diet choices; Provides an overview of existing nutrition guideline development processes; Highlights evidence based scientific nutrition guidance available for specific disease areas, while giving examples of existing examples of patient friendly summaries of this information and nutrition guidance developed by patient organisations for patients; Explains why patient summaries of clinical nutrition guidelines are needed and aims to inspire scientific societies and guideline developers; Provides recommendations for improving existing guideline development processes, improving patient involvement and the development of patient summaries.
Nutrition Guideline Development and Lay Person Summaries (Nov 2018) WHO is the document intended for? Scientific societies and organisations developing clinical nutrition guidelines Patients and carer organisations Healthcare professionals and their organisations
Next Steps for EPF EPF Collaboration with ESPEN Lay version format of existing clinical nutrition guidelines for patients and caregivers are considered by both patients and ESPEN to be a high priority for future work EPF and ESPEN are currently in the process of formalising a collaboration in the context of this project with respect to the development of patient versions of guidelines and to ensure strong patient involvement in the review of new guidelines EPF will work closely with its membership and the wider patient community to facilitate patient involvement in ESPEN s guideline related activities. EPF also hopes to work closely with EFAD and dietitians who can use their expertise and people centred skills to ensure guidance is relevant and easily applied.
