Comprehensive Approach to Rehab for Myotonic Dystrophy

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The Role of Rehab for
Myotonic Dystrophy
 
Lisa Warren, MHS, OTR/L
UF Health Rehab
 
Client-Centered Approach
 
Multidisciplinary approach
 
Healthcare professionals working together for the common goal of improving
the patient’s health, function and quality of life
 
Benefits include improved health outcomes, enhanced satisfaction for clients,
and more efficient use of resources
 
What does a rehab team address?
 
Personal care
Mobility
Energy conservation
Community life
Work
Recreation
 
 
Personal factors
Perception, vision and cognition
Psychosocial factors
Environmental factors
 
Physical Therapy (PT)
 
Overall conditioning – physical activity is important for all
Exercise to slow progression of muscle wasting
Should be individualized and 
monitored 
– cardio/pulmonary considerations, low intensity
Stretching/flexibility
**individuals with myotonic dystrophy may have limited
exercise tolerance and will need to be monitored carefully
 
 
 
PT
 
Mobility  - in home and community
Getting in/out of chair and bed
Assistive devices
Walkers
Wheelchairs
Motorized Scooters
Chair lifts, stair lifts, ceiling lifts, patient lifts
Orthotic devices
Orthotics can support weak muscles and slow contractures
 
Occupational Therapy (OT)
 
The purpose of OT treatment is to help clients learn or relearn occupational
performance needed to live as independently as possible.
For the compensation approach, three options can be explored:
1)Alter the task
2) Prescribe assistive devices or
3) Adapt the environment
 
OT
 
Eating
Adaptive utensils
Positioning
Splints/universal cuffs
 
 
Multi-purpose adaptations
 
OT
 
Dressing
Avoiding buttons and tight clothing
Positioning for dressing
Adaptive equipment
Reacher
Dressing stick
 
OT
 
Bathing
Seat in shower
Grab bars
Wash mitt
 
OT
 
Toileting
Elevated toilet
Grab bars
Attachable bidet
Hygiene assist
 
OT
 
Vision
Contrast and lighting education
Use of line trackers and other techniques to minimize eye fatigue
Cognition
Adaptive strategies
 
Speech Therapy (ST)
 
Assessment and education of swallowing difficulties
weakness of muscles in the upper third of the esophagus results in food
“sticking”
Often unnoticed by client
Associated with nutritional insufficiencies, aspiration pneumonia
Recommendations for dietary changes
Positioning
 
ST
 
Techniques to address
Difficulty chewing
Drooling – due to weak lip closure
 
ST
 
Speech treatment strategies to compensate for
Slow speech rate
Decreased volume
Shortened speech stretches
 
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Using a client-centered and multidisciplinary approach, rehabilitation for Myotonic Dystrophy focuses on addressing personal factors, physical therapy, occupational therapy, and enhancing mobility. The rehab team aims to improve health outcomes and quality of life by addressing personal care, mobility, energy conservation, community integration, work, recreation, and more. Physical therapy emphasizes individualized exercises to slow muscle wasting, while occupational therapy focuses on assisting clients to live independently through adaptive strategies.

  • Rehab
  • Myotonic Dystrophy
  • Client-centered Approach
  • Physical Therapy
  • Occupational Therapy

Uploaded on Sep 20, 2024 | 0 Views


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  1. The Role of Rehab for Myotonic Dystrophy Lisa Warren, MHS, OTR/L UF Health Rehab

  2. Client-Centered Approach

  3. Multidisciplinary approach Healthcare professionals working together for the common goal of improving the patient s health, function and quality of life Benefits include improved health outcomes, enhanced satisfaction for clients, and more efficient use of resources

  4. What does a rehab team address? Personal care Mobility Energy conservation Community life Work Recreation

  5. Personal factors Perception, vision and cognition Psychosocial factors Environmental factors

  6. Physical Therapy (PT) Overall conditioning physical activity is important for all Exercise to slow progression of muscle wasting Should be individualized and monitored cardio/pulmonary considerations, low intensity Stretching/flexibility **individuals with myotonic dystrophy may have limited exercise tolerance and will need to be monitored carefully

  7. PT Mobility - in home and community Getting in/out of chair and bed Assistive devices Walkers Wheelchairs Motorized Scooters Chair lifts, stair lifts, ceiling lifts, patient lifts Orthotic devices Orthotics can support weak muscles and slow contractures

  8. Occupational Therapy (OT) The purpose of OT treatment is to help clients learn or relearn occupational performance needed to live as independently as possible. For the compensation approach, three options can be explored: 1)Alter the task 2) Prescribe assistive devices or 3) Adapt the environment

  9. OT Eating Adaptive utensils Positioning Splints/universal cuffs

  10. Multi-purpose adaptations

  11. OT Dressing Avoiding buttons and tight clothing Positioning for dressing Adaptive equipment Reacher Dressing stick

  12. OT Bathing Seat in shower Grab bars Wash mitt

  13. OT Toileting Elevated toilet Grab bars Attachable bidet Hygiene assist

  14. OT Vision Contrast and lighting education Use of line trackers and other techniques to minimize eye fatigue Cognition Adaptive strategies

  15. Speech Therapy (ST) Assessment and education of swallowing difficulties weakness of muscles in the upper third of the esophagus results in food sticking Often unnoticed by client Associated with nutritional insufficiencies, aspiration pneumonia Recommendations for dietary changes Positioning

  16. ST Techniques to address Difficulty chewing Drooling due to weak lip closure

  17. ST Speech treatment strategies to compensate for Slow speech rate Decreased volume Shortened speech stretches

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