Canadian Centre for Caregiving Excellence: Empowering Caregivers and Advocating for Quality Care

Canadian Centre for Caregiving Excellence (CCCE) focuses on supporting and empowering caregivers, advancing the caregiving field's knowledge, advocating for visionary social policies, and promoting disability-informed approaches. With a mission to value caregiving, support caregivers, and prioritize those accessing care, CCCE addresses the challenges and significant contributions of caregivers in Canada.

• Caregiving
• Empowerment
• Quality Care
• Advocacy
• Disability-Informed

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1. Canadian Centre for Caregiving Excellence

2. Snapshot Family Caregivers in 2023 7.8 million Canadians are family caregivers (1 in 4 Canadians aged 15+) Canadian caregivers provide an average of 19 hours per week of care. For the 10% of caregivers supporting family members with complex disabilities, this number is much higher up to 70 hours per week. Canadians provide 5.7 billion hours of unpaid care per year. This is equivalent to to 32.2% of national healthcare spending. This new data comes from Dr Janet Fast at the University of Alberta. The annual economic value of unpaid family caregivers is $97.1 billion Challenges: loss of income, employment, relentless demands, no respite, burnout, stress and stress-related illnesses. 2 Canadian Centre for Caregiving Excellence

3. Snapshot Care Providers in 2022 Work in a variety of settings including individual homes, group homes, supported apartments, independent-living housing, long-term care and more. Largely racialized and newcomer female workforce with few protections, unclear pathways to advancement. Uneven training and certification landscape. High turnover and workforce shortage (25% shortage across Canada in developmental support workers AND personal support workers). What we ve learned is that one worker can work a PSW shift in the morning, a DSW shift in the evening, and a homecare shift on the weekend. 3 Canadian Centre for Caregiving Excellence

4. About the CCCE Founded in May 2022, after 2 years of roundtables and consultations An arm of and powered by the Azrieli Foundation (not government funded) Focus on the whole landscape of care care givers, care providers, people accessing care Grant making, in-house programs, advocacy and policy development 4 Canadian Centre for Caregiving Excellence

5. Our Vision Canada leading the way in quality care, where caregiving is valued, caregivers are supported, and people accessing care are central to policies and practices. 5 Canadian Centre for Caregiving Excellence

6. Our Mission The Canadian Centre for Caregiving Excellence supports and empowers caregivers and care providers, advances the knowledge and capacity of the caregiving field, and advocates for effective and visionary social policy, with a disability-informed approach. 6 Canadian Centre for Caregiving Excellence

7. Our Values Interdependence Excellence Equity and Inclusion Codesign Advocacy Building Networks 7 Canadian Centre for Caregiving Excellence

8. Our Areas of Focus Education and Leadership Development Support Networks and Knowledge Sharing Advocacy and Policy Development Inclusion and Underserved Communities We are a funder, convener, and advocacy initiative 8 Canadian Centre for Caregiving Excellence

9. Moving beyond bubble baths and muffins While we support individuals and communities, we know that the larger change we want to see in caregiver supports, care providers wages and working conditions, and better care for people accessing care IS POSSIBLE. We need to unite, build a care movement together, and build power. We ve heard loud and clear about muffins and bubble baths. We need to look at policy solutions and government and health systems roles 9 Canadian Centre for Caregiving Excellence

10. Policy Whitepaper Caregivers are the backbone of health and social care systems YET The systems and supports for caregivers are woefully insufficient Governments have largely ignored caregivers to date Demand for caregiving is high and growing every day Aging population and more people with disabilities and complex needs Health care systems are in crisis across the country 10 Canadian Centre for Caregiving Excellence

11. Giving Care An Approach to a Better Caregiving Landscape in Canada 11 Canadian Centre for Caregiving Excellence

12. Policy Agenda for a Better Caregiving Landscape Coordinated Approach to Caregiving Creating Federal and Provincial Legislation Improve, expand, and invest in services for care recipients and care providers Develop strategies for supporting employed caregivers Develop financial supports that reflect the value of caregiving Develop the workforce and improve conditions for care providers 12 Canadian Centre for Caregiving Excellence

13. Caregivers CAN: Join us! The Canadian Caregivers Advisory Network (Caregivers CAN) assembles passionate and knowledgeable caregivers, researchers, and allies to find practical solutions to challenges and mobilize for change. CCCE will continue to build this network with caregivers by listening to their needs and working together to advocate for a better future for all. 13 Canadian Centre for Caregiving Excellence

14. Thank you Canadian Centre for Caregiving Excellence Centre canadien d excellence pour les aidants 2 St. Clair Ave. West, Suite 900 Toronto, ON MV4 1L5 canadiancaregiving.org