Ensuring Quality Data: Guidelines by Alfonso Iorio, MD, PhD
Discover the key principles of good quality data as outlined by Alfonso Iorio, MD, PhD from McMaster University, Canada. Learn about the importance of trustworthiness, appropriateness, and understandability in data collection and analysis. Gain insights into the characteristics of high-quality data that are precise, accurate, reproducible, and have face validity.
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Presentation Transcript
What is good quality data? Alfonso Iorio MD, PhD Health Information Research Unit McMaster University, Canada 1
Disclosures for: Alfonso Iorio In compliance with the PIM* policy, WFH requires the following disclosures be made at each presentation CONFLICT DISCLOSURE IF CONFLICT OF INTEREST EXISTS RESEARCH SUPPORT McMaster receives support for research in hemophilia by Bayer, Biogen, Octapharma, Novo-Nordisk, Pfizer, Shire DIRECTOR, OFFICER, EMPLOYEE Data and Demographics committee, WFH SHAREHOLDER HONORARIA ADVISORY COMMITTEE McMaster receives support for services in hemophilia by Bayer, Biogen, Octapharma, Novo-Nordisk, Pfizer, Shire CONSULTANT * Postgraduate Institute for Medicine 2
Quality Data Trustworhty Trustworthy 1. Appropriate 2. Understandable 3. Powerful Appropriate Powerful 4. Understandable 3
TRUSTWORTHINESS Precise Accurate Reproducible Face validity 4
TRUSTWORTHINESS Time 8:30 8:45 10:20 11:00 Participants 110 160 90 75 6
TRUSTWORTHINESS Time 8:30 8:45 10:20 11:00 Participants 110 160 90 75 7
TRUSTWORTHINESS Time 8:30 8:45 10:20 11:00 Mean Participants 110 160 90 75 108 Max Min 8
APPROPRIATENESS How many participants? Time Participants 8:30 110 How many seats? 8:45 160 Max 10:20 90 How many lunch-boxes? 11:00 75 Min Mean 108 9
APPROPRIATENESS Name Country E-mail Arthur Santos Brazil as@gmail.com Andrea Muller UK millera@nhs.nhr.uk Andreas Solo US js98@providence.edu Andrea White Argentina a.white@live.com Erinn McGill Canada mcgille@live.com ... ... How many women? How many language translations? 10
UNDERSTANDABLE This year, the number of fatal street accident increased by 15 Cirxulating cars Car accidents Fatal/total accidents +10% +10% -2% +10.000/100,000 +200/2000 +15 (525) +25,000/2M -1,000/15,000 +15 (830) +25,000/2M +1,000/15,000 +15 (1700) 11
POWERFUL Time Workshop A 110 160 90 75 108 Workshop B 50 80 70 50 62 Workshop C 140 120 110 60 115 8:30 8:45 10:20 11:00 Mean 12
POWERFUL Time Workshop A 110 160 90 75 108 Workshop B 50 80 70 50 62 Workshop C 140 120 110 60 115 8:30 8:45 10:20 11:00 Mean 13
POWERFUL Time Workshop A 110 160 90 75 108 Workshop B 50 80 70 50 62 Workshop C 140 120 110 60 115 8:30 8:45 10:20 11:00 Mean 14
POWERFUL Time Workshop A 110 160 90 75 108 Workshop B 50 80 70 50 62 Workshop C 140 120 110 60 115 8:30 8:45 10:20 11:00 Mean 15
POWERFUL Details: Time Workshop A Workshop C Room A: 75 seats 8:30 110 140 Room C: 200 seats, free breakfast 8:45 160 120 Critical detail: 10:20 90 110 Plenary session (with free lunch) 11:00 75 60 Mean 108 115 at 10:30 16
SUMMARY Ask important questions Collect reliable and appropriate data Empower your data with proper comparators and meaningful covariates 17
