Comprehensive Guide to Pain and Symptom Management in Palliative Care Education

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Explore a comprehensive guide on pain and symptom management in palliative care education, emphasizing the importance of effective care plans and team participation. Learn about different types of pain, perception variations, and total pain factors affecting end-of-life care in First Nation communities. Gain insights from experts like Margo McCaffery on understanding and addressing pain for terminally ill individuals.


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  1. Pain and Symptom Management Palliative Care Education for Front-Line Workers in First Nation Communities cerah.lakeheadu.ca

  2. A few assumptions A good care plan can almost always alleviate pain Every member of the care team has a responsibility to participate in pain management It is impossible to have high quality end-of-life care when a person is in pain People facing death have a profound fear of pain

  3. Pain is whatever the person experiencing it says it is, and it exists wherever the person says it does . - Margo McCaffery, nurse and pain management expert

  4. Pain Belongs to the person Is enough to make them uncomfortable Caring for the Terminally Ill: Honouring the Choices of the People, p. 55-57

  5. Acute pain Easier to recognize than chronic pain Examples: broken bones, sudden abdominal pain CHPCA, 2008

  6. Chronic pain Examples: arthritis, tooth decay, osteoporosis Often more challenging to diagnose and treat than acute pain

  7. Breakthrough pain Pain that re-emerges before the next dose of pain medication A spontaneous episode or manifestation of pain experienced by the person even though s/he is taking regular pain medication www.cerah.lakeheadu.ca

  8. Perception of and response to pain will vary depending on: The meaning of pain to the individual Prior experience with pain Cultural background Age and gender

  9. Total pain An individual may experience total pain from: the actual physical pain of the disease process intellectual pain from knowledge (or lack of knowledge) of her/his condition and prognosis emotional pain from feelings of anger or loneliness spiritual pain arising from the awareness of impending death

  10. Myths and misconceptions (1 of 2) Health care providers are the experts on assessing pain and determining if pain is real Opioids should only be used for the management of cancer pain Opioid addiction (psychological dependence) is common in people taking opioids for treatment of moderate to severe pain

  11. Myths and misconceptions (2 of 2) Opioid tolerance develops rapidly, necessitating progressively higher doses If one opioid doesn t work for a patient, none of them will

  12. Emotional pain Symbolizes threats the individual is facing Is a constant reminder of the seriousness of the situation Change in the pain may mean the disease is progressing Pain may lead to fears Klee, 2004

  13. Psychological pain Pain may cause depression The stress of pain may cause anxiety Anxiety and depression often aggravate pain Klee, 2004

  14. Existential Pain (1 of 2) It is not unusual for pain to provoke existential questions regardless of the individual's religious and spiritual background Pain may make it difficult to find the peace of mind needed to think through complicated issues Klee, 2004

  15. Existential Pain (2 of 2) The pain may be seen as a punishment Existential suffering may provoke strong emotions that aggravate the pain, making it more difficult to alleviate Klee, 2004

  16. Social pain The family will be affected by the individual s pain They may experience feelings of helplessness, hopelessness Pain may result in social isolation Unresolved family issues may surface (Klee, 2004) www.cerah.lakeheadu.ca

  17. Some barriers to treating pain The myth that pain is to be expected and that pain cannot be managed Patient factors Caregiver factors System factors The most common barrier is caregiver failure to ask about and assess pain

  18. Three pain myths Addiction Tolerance Hallucination Caring for the Terminally Ill: Honouring the Choices of the People, p. 58-59

  19. Pain Characteristics Ways to describe pain Aching Dull Sore Shooting Burning Stabbing www.cerah.lakeheadu.ca

  20. Signs of pain (1 of 2) Grimacing or wincing Bracing (i.e. holding an arm) Guarding/protecting painful area Rubbing Changes in activity level Sleeplessness, restlessness Resistance to movement Withdrawal/depression Decreased appetite CHPCA, 2008 www.cerah.lakeheadu.ca

  21. Signs of pain (2 of 2) General body tension (clenched hands, hunched shoulders, etc.) Tense facial expressions Constant fidgeting or nervous habits such as lip-biting Unexplained withdrawal Strained or higher-pitched tone of voice Increased agitation, anger, etc. www.cerah.lakeheadu.ca

  22. Vocalized pain cues Words or statements such as ouch, or that hurts Verbal protests during care or transfers Moans Cries

  23. When to observe for pain During personal care During transfers and walking Following activities At appropriate intervals after administering pain management interventions

  24. Support Worker role in pain management Ask the individual if they are experiencing pain Watch for signs of pain Observe for side effects of medications Re-assess to evaluate the effectiveness of therapies Administer non-drug treatments Advocate for persons in pain Caring for the Terminally Ill: Honouring the Choices of the People, p. 57

  25. Non-drug Interventions Physical (1 of 2) Massage Cold Heat Complementary Therapy (i.e.. massage) Positioning Exercise Caring for the Terminally Ill: Honouring the Choices of the People, p. 61- 64

  26. Non drug interventions Psychological (2 of 2) Distraction Relaxation Music Comfort foods Imagery Controlled breathing

  27. Advantages of non-drug interventions Low cost Less potential for negative side effects Decreases emotional response to pain Provides clients with a sense of control or involvement

  28. Pain is a more terrible lord of mankind than even death itself. - Albert Schweitzer

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