Challenges in Healthcare System: Lessons from Patty's Story
Patty's journey highlights the complexities faced by individuals managing chronic health conditions like dialysis. The lack of clear communication, treatment burden, and impact on everyday life underscore the need for improved support and understanding in healthcare. Patients like Patty require comprehensive care that goes beyond just medical treatment.
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Presentation Transcript
Limited social activity Chronic fatigue Church 4 times/week Can t travel 6AM 4 children/4 states Guilt Specialized center Run errands Son s house Dialysis Days Snow Everyday life So tired 45 minute drive Husband driving Sleep it off Clean house Misses independence Shorten the time Patty Choices not explained Medicare Food Fluid Diet with husband She didn t know all this Nutritionist Treatment burden Weekly meal planning Fight with billing dept So much energy Husband sets meds Communication Life impact not explained Husband/wife duo Advocating for choices Appointment book
Dialysis Days "Anyone that thinks it's an easy thing to do to, dialysis, it's not. It's not easy cuz it doesn't look like you do much. I mean, you sit in a chair. Takin' your blood and cleanin' it, puttin' it back in ya"
Everyday Life "I don t do much. Everything has to be based on dialysis and when it happens."
Treatment Burden My [heart and kidney] are gonna go [on the transplant list] at the same time, I d like to get a kidney cause that d free up my life
Communication "More information would ve been helpful. Maybe other people get the information first. Your kidney s failed. This is what s gonna happen. Here s your options. I didn t get any of that."
Activity 1. Break up into groups of 4 people each. 2. Each group will be assigned one of the topics discussed.
Activity 3. What did Patty s story teach you about your topic? 4. What are the problems of Patty s situation? Which of these problems are not typically attended to or addressed by current healthcare?
Activity 6. Back in your groups Brainstorm ways in which you might solve the problems you have identified in your topic area for Patty and other patients like her.
What will you take home from this session?
