Cellulitis: A Personal Perspective
Peter Smart
Consumer Referee
16 January 2016
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Suffered multiple episodes of cellulitis
Member of Centre of Evidence Based Dermatology
patient panel
Member of cellulitis PSP steering group
Reviewer of Cochrane cellulitis-related protocols
and reviews
Cited co-author in several papers on cellulitis
Participant in planning Cochrane Colloquium 2018
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Why should patients be involved in systematic reviews?
They know what it is like to suffer from ‘the disease’
(whatever ‘the disease’ is, in my case cellulitis)
They might have some idea of the treatment that
suits them best – and what does not (especially how
to prevent recurrent episodes)
They have the ultimate interest in the outcome of
the research
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What is cellulitis?
acute
acute
bacterial infection of deeper layers of the skin
and underlying tissue
can affect anyone, and totally
without warning
without warning
infection develops suddenly
infection develops suddenly
, can spread through the
body quickly, and severe cases can be life-
threatening
episodes typically last two weeks or longer
about 1/3 of sufferers have
repeat episodes
repeat episodes
many sufferers have never heard of cellulitis until
they are diagnosed with it
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What causes cellulitis?
most common causative organism is group A
streptococcus
But
what causes the causes
what causes the causes
of cellulitis?
athlete’s foot, other breaks in the skin, cut, graze,
eczema
The million Euro question
The million Euro question
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How is cellulitis diagnosed?
typical features – red, painful, hot, swollen and
tender skin
fever, malaise, nausea, shivering, rigors
Differential diagnosis – what else might it be?
DVT, gout, septic arthritis, …
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How is cellulitis treated?
high dose oral antibiotics
high dose intravenous antibiotics
at home or in hospital
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Can repeat episodes be prevented?
long-term low dose antibiotics
non-antibiotic interventions, such as use of
emollients and/or wearing of compression
socks/stockings/ garments/bandages
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?
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At the planning
stage
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Project steering
group
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Reviewer –
protocol and
research papers
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Post-publication
To advise on the perceived relevance and
scope of the proposed research to the
needs/interests of patients
To identify any mechanisms for wider
patient input
To help avoid ‘unintended consequences’
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?
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At the planning
stage
•
Project steering
group
•
Reviewer –
protocol and
research papers
•
Post-publication
To offer a continuing input on patient-
related issues throughout the research
period
Example: the CEBD-James Lind Alliance
Priority Setting Partnerships
Four patients on the cellulitis PSP Steering Group
plus additional patients ar final workshop
Five patients on eczema PSP Steering Group
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?
•
At the planning
stage
•
Project steering
group
•
Reviewer –
protocol and
research papers
•
Post-publication
Feedback on whether the draft (or at
least the plain language summary) is
written in a patient-friendly manner
Offer advice on drafting, especially where
English is not the first language of the
authors
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?
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At the planning
stage
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Project steering
group
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Reviewer –
protocol and
research papers
•
Post-publication
Especially in relation to any patient guides
or handbooks or feedback that are
proposed as one of the outcomes
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Importance of patient training days
Example – CEBD patient panel annual training day
To ensure patient representatives are up to date on
current developments, can contribute to PSPs and
respond to requests for participation in research
programmes
#
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The 2018 Cochrane Colloquium in Edinburgh
Emphasis on the role of patients to Cochrane
research
Looking at innovative ways of involving patients
Seeking joint presentations of
researchers/practitioners and patients
Thank you
Dank je
Danke schön
Merci beaucoup
谢谢
ありがとうございました
Peter Smart, a consumer and referee, shares insights on cellulitis, a bacterial skin infection. He emphasizes the importance of involving patients in research for better outcomes. Cellulitis is described as an acute infection that can be life-threatening if not treated promptly. The causes, symptoms, and diagnosis of cellulitis are explained in detail.
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Presentation Transcript
Peter Smart Consumer Referee 16 January 2016
Consumers and research Consumers and research Personal credentials Personal credentials Suffered multiple episodes of cellulitis Member of Centre of Evidence Based Dermatology patient panel Member of cellulitis PSP steering group Reviewer of Cochrane cellulitis-related protocols and reviews Cited co-author in several papers on cellulitis Participant in planning Cochrane Colloquium 2018
Consumers and research Consumers and research A personal perspective A personal perspective Why should patients be involved in systematic reviews? They know what it is like to suffer from the disease (whatever the disease is, in my case cellulitis) They might have some idea of the treatment that suits them best and what does not (especially how to prevent recurrent episodes) They have the ultimate interest in the outcome of the research
Consumers and research Consumers and research A personal perspective A personal perspective - - cellulitis cellulitis What is cellulitis? acute bacterial infection of deeper layers of the skin and underlying tissue can affect anyone, and totally without warning infection develops suddenly, can spread through the body quickly, and severe cases can be life- threatening episodes typically last two weeks or longer about 1/3 of sufferers have repeat episodes many sufferers have never heard of cellulitis until they are diagnosed with it
Consumers and research Consumers and research A personal perspective A personal perspective - - cellulitis cellulitis What causes cellulitis? most common causative organism is group A streptococcus But what causes the causes of cellulitis? athlete s foot, other breaks in the skin, cut, graze, eczema The million Euro question
Consumers and research Consumers and research A personal perspective A personal perspective - - cellulitis cellulitis How is cellulitis diagnosed? typical features red, painful, hot, swollen and tender skin fever, malaise, nausea, shivering, rigors Differential diagnosis what else might it be? DVT, gout, septic arthritis,
Consumers and research Consumers and research A personal perspective A personal perspective - - cellulitis cellulitis How is cellulitis treated? high dose oral antibiotics high dose intravenous antibiotics at home or in hospital
Consumers and research Consumers and research A personal perspective A personal perspective - - cellulitis cellulitis Can repeat episodes be prevented? long-term low dose antibiotics non-antibiotic interventions, such as use of emollients and/or wearing of compression socks/stockings/ garments/bandages
Consumers and research Consumers and research Why involve patients in research? Why involve patients in research? At the planning stage Project steering group Reviewer protocol and research papers Post-publication To advise on the perceived relevance and scope of the proposed research to the needs/interests of patients To identify any mechanisms for wider patient input To help avoid unintended consequences
Consumers and research Consumers and research Why involve patients in research? Why involve patients in research? At the planning stage Project steering group Reviewer protocol and research papers Post-publication To offer a continuing input on patient- related issues throughout the research period Example: the CEBD-James Lind Alliance Priority Setting Partnerships Four patients on the cellulitis PSP Steering Group plus additional patients ar final workshop Five patients on eczema PSP Steering Group
Consumers and research Consumers and research Why involve patients in research? Why involve patients in research? At the planning stage Project steering group Reviewer protocol and research papers Post-publication Feedback on whether the draft (or at least the plain language summary) is written in a patient-friendly manner Offer advice on drafting, especially where English is not the first language of the authors
Consumers and research Consumers and research Why involve patients in research? Why involve patients in research? At the planning stage Project steering group Reviewer protocol and research papers Post-publication Especially in relation to any patient guides or handbooks or feedback that are proposed as one of the outcomes
Consumers and research Consumers and research A personal perspective A personal perspective Importance of patient training days Example CEBD patient panel annual training day To ensure patient representatives are up to date on current developments, can contribute to PSPs and respond to requests for participation in research programmes
# #PatientsIncluded PatientsIncluded The international dimension The international dimension The 2018 Cochrane Colloquium in Edinburgh Emphasis on the role of patients to Cochrane research Looking at innovative ways of involving patients Seeking joint presentations of researchers/practitioners and patients
Thank you Dank je Danke sch n Merci beaucoup
