
Cancer Registry Workflow in the Netherlands
Explore the comprehensive cancer registry workflow in the Netherlands, detailing data collection from patient files, diagnosis, treatment, and specialized protocols for certain tumor sites.
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Presentation Transcript
Januari 2014 Workflow of the Netherlands Cancer Registry Sabine Siesling Comprehensive Cancer Centre the Netherlands V i a B e e l d | K o p t e k s t e n v 1 1
Netherlands 17 million inhabitants >100,000 new cancer cases per year 97 public hospitals in total 8 university hospitals 1 specialized cancer hospital 28 Educational hospitals 8 regions (former Cancer Centre regions> networks)
Netherlands Cancer Registry 95 hospitals in the Netherlands
Notification PALGA> pathology report < 3 weeks first registration < 9-12 months Data on patient, tumour, treatment, co-morbidity Ones a year Vital status > linkage with the national municipality registry
Items gathered directly from the patient files Patients data Diagnostics (some tumours) Tumour data - ICDO - Morphology - # lymph nodes, # positive lymph nodes - Stage in (c and p) TNM (if applicable) Treatment data - For some tumours in detail
Specialities For some tumour sites (breast cancer) we gather recurrence of disease within 5 years after diagnosis In retrospect From patient files (not only pathologically confirmed recurrences) With treatment data
Flow annotation Items & Possible remarks Agreed indicatorset Annotation question Task list selection Tasklist specialist remark Tasklist Registrar Change the record Agreed indicatorset discussion (partly )no changes
Annotation Remark is possible per item - internal (for other registrar) - External (for clinician)
Change of practice change the work of the registrars in future in several ways: more dialogue with clinicians more monitoring function more insight in the use of the data More up-to-date work (deadline) which all can all improve the data.